Hi,
I had surgery / radio / Chemo for head and neck cancer (SCC) just over 2.5 years ago and things went comparatively well.
I was wondering what other people at this stage post treatment felt about their energy levels and general state of mind. I'm remaining fit, running, circuit training etc and (most days) the treatment seems a relatively distant memory.
However I'm struggling with tiredness and to be honest a general lack of enthusiasm / energy. Things seems to be more of a struggle than they *should* be - lack of focus, not looking forward to events etc.
I was wondering if this is anything to with the treatment - have other people felt this way this far after treatment - or perhaps I'm just getting old!
Any tips welcome on how to overcome this!
Thanks
A.
Hi Andy
Ivamn 2 years post radiotherapy for tonsil cancer. Have you had regular thyroid blood tests? It’s common in head and neck patients to develop thyroid issues. I have had 3 blood tests so far all come back within normal parameters. I do know of at least 3 others who were treated same time as me which are now taking thyroxine. Each of them were experiencing late onset fatigue issues. Maybe worth a try ? I do get tired but for me a 20 min lie doen sorts me out
good luck Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Hazel - thanks for the tip.
I have not had specific thyroid blood tests (although I have had plenty of blood tests so maybe that was covered..) I do have slightly low WBC counts (lymphopenia) but nothing too low....
I'll check back about the results of thyroid tests and whether they were actually done as part of the bloods.
Thanks again
Getting your thyroid checked would also be my first suggestion. I developed an underactive thyroid a few months after I finshed treatment for which I take Levothyroxin but it can develop years afterwards.
I would also say that I do still suffer with tiredness/lack of energy etc which is something I know several people have also said (I'm 2 years post treatment). It's also not unusual to suffer some cognitive issues as a long term effect of treatment which can manifest itself as lack of focus.
If you are diagnosed with hypothyroidism the medication may well help with some of your issues but I'm afraid I can't offer any other tips. It seems to me you're already getting plenty of exercise and fresh air which is great for your physical and mental wellbeing. Like Hazel, when the tiredness comes on I take a break and rest up.
Good luck Andy.
Linda x
HimAndy I know in each of my bloods they were thyroid specific ,nitbthe general bloods that drs tend to do so definitely worth checking from memory it’s T.S.H and T4 blood test .
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hello Andy. The others have things covered. Other signs of low thyroid are gaining weight and feeling the cold. Have you got an any of those symptoms? Are you in Egham? (probably stupid question) I used to work at the Vets there.......many many moons ago.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007