Treatment finished TODAY :)

Hi concentrate on getting through recovery if you’ve managed to do any work you have done very well. Don’t even think about further down the line put your trust in the treatment youve  got at least 3 months before any scans m in my case it was 18 weeks before pet ct scan .Well done on completing treatment ,don’t rush the next stage keep on top ig nutrition and important at least 2-3 litres of water .

Hazsl x

Thanks for the update Trev, well done in getting through the treatment, it makes sense to use the Fortisips and milk until your swallowing has recovered, i think you are doing well in doing 25 hours so i think your company should be grateful you are still working so don't rush back to full-time as your body needs a rest. Pleased you are feeling more positive now, just concentrate on your recovery now as you have come a long way since your first post , all the best. 

                                                                                Chris 

Hi TrevW, 
Great that you’ve finished your treatment. I’m amazed you’re working, even part time! I definitely could not have done that. I went back to work on a phased in basis after treatment finished which I think was around 3 months. 
I can remember clearly the fatigue. 
Don’t burn yourself out, your body needs to recover. 
All the best,

little-fi

Crikey Trev you must be an iron man......... still working

Well done, you sound like you are going to make a brilliant recovery. If you can soldier on for the next month I recon you'll be up and at em in no time. Just shows how we are all so different. I was in bits at your stage, but then I am much older than you and head wasn't in the right place either. Brilliant.

It’s so encouraging to read the updates like this, it helps us all to stay positive! I wish you all the best, not sure what you do for work, hopefully, it’s at least working from home. 

Great news Trev  I’m 2 weeks post, managed to do a little work throughout but didn’t push myself to be honest. I was admitted to hospital twice for neutropenia sepsis (where I didn’t work lol). I feel a lot better, desperate for a burger but I’m a long way off that. My biggest problem is burning in my tongue, and of course the dreaded mucus.  Keep up the nutrition and the positive vibes.   Best of luck. Pamela

How lovely to hear from you Pamela and to hear you’ve got through treatment.  You are in the middle of the worst time but it gets better. Gelclair is good for your mouth at this stage. Have you tried that? 
A nice emollient mouthwash like Biotene helps too. 
I hipe you continue to improve. Xx

Congratulations on finishing your treatment TrevW and I can't believe you managed to keep working, even part time!

Don't feel pressured in going back to work full time.  Listen to your body and take things one day at a time while you recover.   

All the best

Linda x

Thanks for the lovely comments all.

Working is only remotely, its less of a deal than it sounds.

And i am definitely not an iron man :) i had a mini meltdown during week 4 (which resulted in better pain meds!)

In fact that is the take i would give anyone starting this treatment...if your pain is not controlled..definitely speak out.

Totally with you on the mucus Pamela!! has that shown any signs of easing yet? i would say mucus and its associated nausea is worse than the pain for me.

Trev

Don’t rush TrevW - its a marathon not a sprint. Look after yourself x