Parotid Gland Cancer

FormerMember
FormerMember
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Hi

I’m newly diagnosed with a potential Mucoepidermoid cancer on the parotid gland. Had breast cancer in 2012 and Sepsis 2018. Waiting for Surgery in early July, does anyone on here have experience of this? I’m a v positive upbeat person usually but I’m really struggling this time! Any help appreciated. X

  • Hi Janie D welxome fo the head and neck forum I am Hazel I am 22 month post radiotherapy for tonsil cancer with several affected lymph nodes.Sorry can’t  help with partoid gland cancer but just wanted to touch base .Hopedully  someone will,pop,along with advise .I had 35 radiotherapy sessions and 2 chemotherapy detailed below is my blog with links to others but are mostly ORapharangeal cancers .

    Good luck remain positive it does help as am sure you already know.

    Hazel xx

      

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Good evening, when i had my first cancer operation i had one of my big saliva glands (parotid )removed and a few smaller ones, although my main op was for the floor of the mouth cancer but found the saliva glands to be suspect, to tell you the truth the removal and recover of the glands did not give me any worries and the area recovered ok, but of course, there is a lack of saliva from therein and I still have a dry mouth so drink plenty of liquid. A lot depends on how many they remove and how much, during the day im ok and can produce enough saliva to get by on but the drinking helps immensely. Please re-post if you want further help or advice. Best wishes, take care.

                                                                          Chris x

    Its sometimes not easy but its worth it ! 

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  • Hi I've just been diagnosed with the same cancer. I had surgery 4 weeks ago. I'm starting 6 weeks of radiotherapy in few weeks. I too had breast cancer in 2009, colon cancer in 2018 and vulva cancer in 2021. How are you doing with your treatment?

  • Hi Pcas and welcome to the community. The original member has left the forum so you won’t get an answer. Can I suggest you start a new thread by tapping the large plus on the right at the top of this one and you should get others joining in. 
    So be sorry to hear you’ve had a bit of a rough road getting here 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi

    I was diagnosed with Parotid Gland tumor 18 months ago (which caused facial paralysis) I did not have any surgery. I had 35 sessions of radiotherapy which left me with no taste, no saliva, no appetite I am now 14 months post treatment. my taste is almost back, still very little saliva and appetite well improved Took me nearly 12 months to get this far  Still have facial paralysis which I was told today is permanent.It was a hard slog but I am now out the other end and looking forward to summer

    keep positive

    Ivan

  • Thanks Ivan, for spotting this and popping an answer on.Good to hear you are recovering

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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