Hallucinations

FormerMember
FormerMember
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Has anyone else suffered from hallucinations while on chemo and radiotherapy?

My Mom is saying some very random stuff and we've checked she does not have a fever, I'm wondering if it's her medication, treatment or something else 

  • Good evening Bumbles, i never experienced this, the only time I had hallucinations was when on was a certain anti-depressant so they gave me a different one and it was ok. I'm not sure if chemotherapy has this side effect on some people. Hope you can get this problem looked at, if it continues then please phone your doctor. Best wishes .

                                                                        Chris x

    Its sometimes not easy but its worth it ! 

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  • FormerMember
    FormerMember in reply to chris2012

    Thank you Chris, I can only assume it is to do with her meds of Lorazepam I will speak to the doctors tomorrow

    Really appreciate you replying back to me :-) 

  • No worries, that could well be the problem Bumbles34, let's hope so as they can then offer an alternative, would be nice to know the outcome. Thanks for replying. 

                                                           Chris x 

    Its sometimes not easy but its worth it ! 

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  • Hi there

    hope you’re doing ok. My husband had terrible hallucinations during his treatment the first time. We put it down to either steroids or chemotherapy or oramorphe. We were never sure but they were so bad he stopped all medication for a short while. He still remembers now the weird things he saw. 

    could be a process of elimination.  Good luck x

  • hi all

    just wandering around the site, originally from the breast group but sometimes pick up posts without replies, and noticed the 'hallucinations' so I thought I'd chip in with my tuppence.

    There's actually quite a few things that allow the mind to wander, top of the list is morphine, named after the god of dreams, the wiki entry doesn't really allude to this, simply saying it makes you feel sleepy but I know I had some fantastic and very realistic 'dreams' when I was taking some reasonably heavy painkillers through the T phase, my shins and feet were incredibly painful, I was also given Lorazepam, as a short term measure and I think that has a similar effect. The combination of the two almost certainly would have.

    Water and salts imbalance also causes delirium / hallucinations and needs checking, also water infections. 

    Lack of sleep or lack of good quality sleep can also affect your mind and that is a side effect of treatment nobody really mentioned. 

    Do the hallucinations worry her ???

    Carolyn

    xx

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  • FormerMember
    FormerMember in reply to Carolyn28

    Thank you Carolyn,

    Hope you are doing okay 

    No they are not worrying her but she's adamant things are real and they are not, it's more worrying to me.

    She is on morphine but not a lot but that doesn't means she's not sensitive to it. We spoke to a nurse today they are going to do bloods on Wednesday to investigate what is causing this 

    Thank you for taking the time to reply to me 

    Keep safe x

  • hi

    how old is your mum?  

    do get them to check her fluids / salts as you do need to stay hydrated, it's easy to skip a drink because you're too tired to keep getting up to go to the loo

    There's tales of sailors going mad due to drinking sea water, which is going to cause a major salts imbalance. 

    I'm trying to stay sane in the lockdown ... damn virus.

    Carolyn

    xx

     real life success stories to remind you that people do survive breast cancer

    https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

    Dr Peter Harvey

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

     

  • If everything else is ok morphine is very often the chief culprit. 
    Some people are just genetically unable to deal with even tiny amounts of opiates. 
    Her team will know this and find something else to give her 

    Good luck and let us know how she gets on. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Bumbles

    Both my dad and my step dad have hallucinations and say completely random things every time they have morphine based meds.  Neither of them have any idea that they're acting differently.

    Linda x