Hello All
Last May I was diagnosed with SCC of the Epiglottis, had 2 lots of Laser Resection and got clear margins. Thought great that wasn't too bad I have beaten Cancer...….
Well check up in January not too bad said the stump was slightly raised come back in 5 weeks instead of six. Two weeks later I developed a lump on my top lip. Saw my dermatologist and he said you need to see maxilla facial I am certain this is a SCC. So I bought forward my check up by a week and they called Maxillo facial in. By now lump had grown, they did a biopsy same week and it is cancerous. At the same time a new growth was noticed on my Epiglottis, so was referred for biopsy. While this has been going on Respitory have been watching a couple of lung nodules. So I have a possible 3 sites of Cancer. Been to MDT today and Radiotherapy is the treatment for my lip. Biopsy still needs to be done on Epiglottis, but Pre op would not clear me for surgery until I get results of latest lung scan also done today. I feel like I am going round in circles waiting for someone to make the first move and no one can tell me if I have a secondary on the lip from the Epiglottis or a new primary I am getting so confused with what is going on. I was trying to ask questions today and the Radiotherapist consultant said we have to get started or opt for Chemo for palliative care. Are you all confused yet because I am. So then the dentist arrived and thank god I have good teeth so no delays to start of Radiotherapy as the lip tumor is still growing and too large for surgery that might leave me with something resembling a face. Was warned that it will be very painful because of nerve ending etc. It is already so not sure how I am going to cope with even more pain and struggling to get any food in my mouth already and drinking through a straw so HELP...
Hi Mo, so sorry this is happening to you and hope they get to the bottom of what is causing it very soon. I love your attitude to it all- keep up the fight.
Hope Sherman enjoyed your rendition. 
All the best
little-fi x
Hi Mo. At least Sherman will be able to sing along with you 
Best of luck with the rest of the treatment and tests. It’s just as well that patients can be so well informed these days. The experts sometimes can’t see the wood for the trees.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
