Here we go round the Mulberry Bush

Dearest Mo so sorry you’re finding yourself in this situation. Thanks for letting us know. I was thinking about you just this morning and hoping you were ok. I hope the medics can get to the bottom of this and give you some relief

Take care xxx

Hi Mo Just had to re read  your post twice how unlucky can one person be.Please stay  in here we might not be in yiu position skin cancer wise but you are part if our family we will all help as much as we can if only by being g here to hear your rants and Sherman’s exploits. Sorry to hear about your father in law ,think in Europe 2 days us the standard for funerals.  

Are you being referred to another consultant or staying with same one, Plus yiu have every right to be feeling down ,but remember tomorrow is another day. 

Sending hugs Hazelmxx

Wow-just caught up and can't believe how much you have had thrown at you recently. I also had mum & dad pass away within my treatment time frame and it is very stressful without the addition of the virus restrictions. Truly hope the team will get on top of the multiple problem sites and you get some respite and a positive outcome. All the very best to you.

Tricia

Pleased you're going to stick around with us Mo but really sorry to read about your situation.

I do hope they get your treatment sorted soon.

Linda x

Thanks all, as I said yesterday have bounced back today, decided I am going back to work for a while, been feeling like a prisoner this past month or so.  Waiting for date of surgery then will be off again but they understand and would like me back for a while at least I might be able to cover so those that have worked all through can take a bit of leave.  On another note had a call this morning from hospital, had a chest CT a month ago, never heard anything so assumed all was OK with my lungs, but they want me to do a lung function test and see the consultant face to face on Tuesday hmm so now what me thinks.  Also got a couple of raised Lymph nodes on back of neck, hopefully i have used the wrong shampoo as my skin is really itchy at the moment but the way my luck has been going will keep a watchful eye and hope they go down.

I know we shouldnt Dr Google but been trying to research all the things that are happening and am thinking of asking for a genetic test as all could be tied to something like Muir Torres, 40 years of Keratoacanthomas, Crohns - small bowel disease, throat cancer and now multiple SCC also had some pre-cancerous lesions in the Gynae area 20 years ago with a reccurrance 2.5 years ago.  My dermatologist has always suspects Ferguson Smith Syndrome but the whole picture does seem to be something genetic which has been fast tracked by immunosuppressants, sorry I am waffling but wanted to record these thoughts.

On a happier note Sherman is still being a naughty boy, just stolen my tissue, he has a fascination for paper tissues, have to hide the andrex or he rips it to shreds.  Been enjoying a few walkies in the woods, its his second birthday in 12 days time, will hope he starts growing up soon, ha ha.

Mike if you are reading posts, hope you can get the swallowing test right soon and get to relax at home.  Much love and healing thoughts to you.

All the Best Mo xx

Hi Mo. Good to hear you sounding a little better. Maybe there is a lightbulb moment there with your cancers? There is a lady on an American cancer forum who is in a similar situation as you. Repeated tumours and history of immune suppression. I hope they get somewhere with this

Sherman’s almost 2  sonthe terribles 2 s to look forward to as well . Re your research  think we  would all do the same if in your unique position Mo.Maybe mention this to consultants what’s the worse they can say ?Like DAni says  might be lightbulb moment. Please let us know after Tuesday meeting dontvread too much into anything , keep open mind until you’ve got the facts 

sending hugs Hazel xx

All the best with your return to work Mo.

If I was in your situation I would definitely be doing.some.research to try and throw some light on things.    Good luck with it.

Linda x

Hello All

Well attended my huff an puff lung function test this morning, nurse walked me round to try and get me an earlier appointment with the doctor and I got seen about half an hour sooner than appointment time.  Seems one of the nodules has grown a little more so they are sending me for another Pet scan and if it lights up they are recommending I have targetted Radiotherapy, my heart fell at the thought of more radio but apparently will just be a few sessions to try and kill off the nodule while it is still small.  Hoping its not a bright lights moment, still got a couple of small bumps on back of neck so hopefully scan will show if there is anything going on at the same time, they have been searching for lymph nodes for the past 18 months, I told them i didnt have any.  Got home and received a frantic call from the hospital, where was I....  Apparently the lung cancer nurses had wanted to meet me so I had someone to talk to...  Suggested she read my notes LOL.  Bless her she was quite put out so I ended up having to take her number and put her at ease, had to laugh to myself.  I do feel like they think I am blase about the whole situation, they have no idea, nor do I most days.  Just keep ticking along.

Ho hum Take care all

Mo xx

Hi Mo. Great to see you in good spirits at leats here. I admire your fortitude. You must be the most upbeat person in this group :) 

Are you going to have Cyberknife? It's a short sharp treatment as you say. It will zap the b....r! BUT I hope it's not needed and nothing lights up. Keep going, you're doing great. Love to Sherman