How can I ask?

FormerMember
FormerMember
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Mum has stage 4 throat cancer at the primary site which has spread to both lungs. We given 4-6 months prognosis on 29th Oct. Mum has recently finished a very short blast of radiation on the aggressive throat tumour and we are approaching the end of week 4 side affects from radiation. 

We have some consultations approaching with oncologists and other specialists. Mum’s beautiful and brave way of coping is not wanting to know what’s coming next. She doesn’t want to dread the next stage. Whilst I whole heartedly support mum’s Strength and way of coping, i feel in the dark about what’s coming and feel the need to know to prepare - or is this unhelpful to the situation, I’m lost?! 

How would I go about finding out what to expect  Next? Should I ask if mum doesn’t want to know? Feeling confused, scared. What have others done in this situation. New to this amazing platform and so grateful in advance of any support. 

  • FormerMember
    FormerMember

    Hi to you and welcome. I am new to this forum as well but it is full of amazing people with brilliant advice. You have a very brave Mum and I think you must share her characteristics. My mum died of mesothelioma and on my own I asked her consultant what was going to happen. He explained everything and needless to say Mum was kept in the dark. I would phone the main consultants secretary and ask to speak to him in confidence. I can't believe I am taking the liberty of offering advice in such terrible circumstances but hopefully other people may have more experience that they can share with you. X

  • Nor Berry is right

    Your mums consultant will tell you everything you need to know in confidence. 
    so sorry you are both in this spot. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to FormerMember

    Can’t thank you enough for taking the time to reply. Thank you for your kind words, so uplifting. Very helpful advice which I will most definitely be acting on- thank you. 

  • FormerMember
    FormerMember in reply to Beesuit

    Thank you so much for your response. I will be most definitely be contacting the secretary. Great advice. 

  • Hi RKing

    So sorry you find yourselves in these circumstances but pleased you've found the forum where you'll receive some good advice and support.

    We were in a similar situation with my father in law who showed incredible strength throughout and never, ever complained.  It seems some people are just like that.

    As has been suggested, we were able to speak to the consultants and the GP so we knew what was happening and what to expect.

    Wishing you all the very best.

    Linda x

  • FormerMember
    FormerMember in reply to LindaWT

    Linda, 

    What a beautiful message! Thank you. Do we need to tell mum in order to get her permission for professionals to speak to us? I’m guessing they won’t elaborate unless mum grants permission for them to do so? What are your thoughts? 

    Rebecca 

  • Hi Rebecca

    We didn't need to ask my father in law for his permission to speak to anyone although any treatment required his permission.   As it happens it was just as well we made sure we were as informed as possible as he was unable to grasp what was happening as time went on.  The professionals seemed more than happy to speak to us.

    Linda x

  • Good evening RKing , so sorry to hear about your mum, i remember when my mum was ill and we were told that there was nothing they could do, she like your mum did not want to know what lay ahead and I'm glad she did as she had a lovely life and wanted it to stay that way full of great memories. As the lovely people on here have said speaking to your mum's consultant should not be a problem and does not need your mum's permission. Sending reassuring hugs, take care.

                                                                                                            Chris x

    Its sometimes not easy but its worth it ! 

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  • FormerMember
    FormerMember in reply to chris2012

    Thank you for this. You write so positively which is so uplifting! So sorry to hear about your mum too. What a wonderful way for her to think! I will, with my sister, be asking our questions at our next consultation. Thank you.