Starting the "journey"

FormerMember
FormerMember
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Hi ya ,manup1 here. Change my name I think. How can I man up to this. Had biopsies done . That was bad enough. Spent the best of today out like a light. I'm glad my wife was driving today. The more I read the more respect I have for those of you who are receiving treatment. It frightens me on many levels,but I've taken the 1st few tentative steps and here's hoping I can be as strong as you guys.

  • Hi man up you’ve made the start so yiu can do it. I was a 61 year old wimp and I did it , biopsy radiotherapy and chemotherapy plenty if us in here to help you through it. 

    Its really a case of been there done itbseen the film and gotbthe t shirt. Between us we have experience of most things .once yiu get biopsy resukts and know what yiu are dealingbwith and get treatment plan thjngs fall into place.

    remember  take the pain killers you’ve been given them for a reason no prizes for being brave.

    use saltbwater rinses as well they help if needed 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi there Manup 1 

    Welcome and don’t let anyone tell you to manup! its definitely not a situation for that and theres no need to think you have to endure it in silence. My hubby was diagnosed in Dec 2015 and after treatment he has been cancer free for 3 1/2 years. I have to say we found this part - the tests and waiting for results really tough and once you know what you’re dealing with you feel a bit more in control.

    Well done for reaching out and although others experiences sound frightening remember everyone is different and copes with things in different ways. I would say that working as a team with your wife and medics helps and ask loads of questions - nothing us ever too silly to ask- make sure you take a pen and paper with you to appointments so you can write things down as you wont remember what was said when you come out. 
    Good luck with the biopsy results and theres lots of lovely people on here who will be happy to chat and offer any tips they may have.

    best wishes

    Emma

    Emma
  • Well what choice do we have?

    It’s amazing what inner strength you’ll find but you’re allowed to be frightened,  angry and fall apart now and again. 
    But you’ll make it

    PS

    See if you can get Caphosol from your team. We are discussing this on another thread. I’m sure it’s better used before your mouth gets too bad. Good luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi manup1, please stay strong and positive, slowly does it so take each day as it comes trying not to think ahead too much. You will be well looked after all the way so try not to get frightened as i found it no way as scary as its made out to be, I think it's just going into the unknown that makes us wary, mine was a long slog but we got there in the end, I'm sure you will be as strong and determined as us all and get a positive outcome, wishing you all the best , take care

                                                                       Chris 

    Its sometimes not easy but its worth it ! 

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  • We're all here for you and each other.  You've made some big steps - one of which is taking charge of this cancer and joining this site to learn and eventually share experiences with those that follow.

    Each of us have a unique journey and what troubles or works for one may not be the same for you.

    Your wife is there for you.  Mine has been absolutely amazing in dealing with the mental trauma my illness has inflicted on her.  She is probably the most important part of getting better.  I'm sure your wife will be as well.

    Many of us (men) find it difficult to be ever so slightly out of control of a situation.  I do.  Information and taking charge of the decisions made relating to you and your family is important.  It's your body.  Listen to the risks and options then make a decision you feel comfortable with as to how you move forwards.

    Sleep is an important healer.  Don't be afraid to ask for drugs to help you get through this.  By taking control you will find it easier and recovery quicker.

    I'm still relatively near the start of my journey so if you want to ask me anything feel free to do so (my profile has my journey so far)

    Good luck!

    Peter
    See my profile for more details of my convoluted journey
  • Hubby has just finished his treatment so if we can be of any help then please shout up.

    It’s  our first consultant appointments today and tomorrow since we both finished radiotherapy on 14 Jan 2020.

    Good luck and you will do this.

    Sharon xx

    Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20

    Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20 

     
     
  • FormerMember
    FormerMember in reply to Newlymarried

    Hi Emma

    Back to work today,after biopsies, maybe not the cleverest move but "life as normal eh?"will sit down with boss next week and take it from there

    Paul