Hi All
Just a sounding board really. Ssc lower lhs mandible. Had radical chemotherapy and chemoradiotherapy but unsuccessful. Tumour didn't shrink and is now growing pretty aggressively.
6 to 12 month if immunotherapy not effective which i start Monday. Can take 3 month to be effective if effective at all.
Appointments made with palliative team next week as well. Hospital and McMillan have been quite superb.
Feeling quite low and sh@t at the moment, bit still early doors i suppose and lots going through my mind.
Anybody who wishes to relay their experiences with immunotherapy or palliative management please do so.
I want to grab hold of my pension and life assurance if possible so my wife and kids can see it in my lifetime, although everything is covered by my will so really not a problem. Any thoughts here welcome. I'm an accountant so i like things in order.
Sorry it's all a bit random, bit stuff is atm.
Alan x
So sorry to read your story Alan and find it very difficult to answer as it's not a common topic on here. It's possible someone might be able to give you information on immunotherapy though but again that's not me I'm afraid.
It might help if you joined the Living with Incurable Cancer group, you'll probably find more people in a similar situation to yourself there. Personally all I can do is sympathise with you and your loved ones and hope that you can make what time you have left together as memorable as possible; that's what we did with my mum a couple of years back and it's been a great comfort to us left behind.
And it's not random at all, very lucid in fact considering where your head must be.
Mike x and a manly hug.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
