Capox chemo - starting soon

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My first post here! Hi everyone. I was diagnosed with a gastro oesophageal junction cancer T2 N1 MO in May. Surgery not offered due to age and other illnesses. After 15 face to face appointments and procedures I’m due to start CAPOX chemo - 6-8 three week cycles.  My initial question is when is the best and worst times in that cycle? I realise everyone is different but wonder if there is a general trend

  • I did have Capox to start but had a lot of problems so everything got changed around a lot so my experience probably wouldn’t be helpful to hear about . Just to say everyone is different and some people have very few side effects and others like me have a lot of problems .

    Oxaliplatin causes extreme cold sensitivity so watch out for that - even touching Luke warm water is painful . I had really bad sickness so max out on the anti emitics. If you’re having oxaliplatin via IV as one infusion and then Capecitabine tablets most people seem to say that once the oxaliplatin has worked its way out things are a little easier.

    Good luck and I hope it goes smoothly for you . Take one day at a time and don’t look too far ahead 

  • My only comment as I'm quite new here is to eat small amounts regularly. I find an empty tummy on this and I can feel a bit nauseous. Even a couple of biscuits helps! X