Hi all my husband was diagnosed with a UT1b n1 adenocarcinoma and has just finished four rounds of FLOT. He coped well with the chemo apart from now he has neuropathy and his skin on his hands has gone black and is peeling. We have just learnt following a CT scan that the tumour has thickened and another suspious lymph node has been discovered near the stomach in addition to the two we knew were there. He now has to have another PET scan and brain scan and then another staging laparoscopy to decide if the surgery he has pencilled in can go ahead. Has anyone here experienced any of this on their journey this is not what we expected how can it have all got worse following the chemo
I’m very sorry you have found yourself here but there are many people who can share their experiences and provide welcome support. My husband is 11 months post surgery. He also had a bad time with FLOT before the op and his hands were in a bad way too. He also ultimately lost finger and toenails. Doublebase cream helped his skin and tablets were prescribed both for that and for neuropathy. The response to chemo is graded 1 to 5 with 1 being a complete response. My husband was graded at 4 so a partial, limited response. As a result he was not given chemo after his op as it would have done harm with little benefit. I hope you can get a treatment plan soon. Sending best wishes.
G xx
Thank you
i had no idea the chemo response was graded so that is new to me and I suppose it will make difference to the decision on surgery.
Off for another PET scan now to see if it’s spread wish us luck x
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