Hi I'm new on here, I've been reading for a few weeks but this is my first post.
On the 7th June 25 after a endoscopy I was diagnosed with a 5cm malignant tumour, this was two weeks after a self financed CT Scan through the NHS that highlighted no major strictures. I self financed because I was in significant pain radiating through to my back and my GP wasn't really moving after four visits. This was followed up be PET scan and an endoscopy.
Confirming that I have a t4a b n2 m0 unresectable esophageal adenocarcinoma. It has spread to multiple para aortic lymph nodes making it currently inoperable.
iI am a very fit 66 year old in general good health. Still able to eat solids with occasional dysphasia but if I eat slowly I'm usually ok. I have just completed 3of 4 sessions of FLOT with no major side effects, except when I start self injecting steroid for 5 days from day five post chemo. After session Four I will have another CT scan hopefully shrinking the tumours .
Has anybody had success in moving from non operable to operable after FLOT. Need to get this PICC line out of my arm so I can get back on the golf course.
My choice if possible would be to have it surgically removed.
