Eight years on.

  • 35 replies
  • 87 subscribers
  • 2159 views

Hi all,

Just wanted to post some positive thoughts for all you folks out there having treatment or recovering.

I had chemo and radiotherapy for stage 2 and then the Ivor Lewis op. The op was eight years ago this last April, age 58. I'm now 66. Side effects, if I can call them that, are limited and minor. I can't eat large amounts of food in one go. It's a bit embarrassing some times as a resturant meal or food at family occasions can be difficult to finish and I don't like people thinking I've not liked it. On the other hand, grazing is easy. Family often joke that I always seem to be eating. I still have my pillows propped up in bed, but invariably find myself laying flat with only some minor aches and pains for a short while after getting up. My favourite hobbies are photography and hiking. The hiking doesn't cause me any discomfort other that what everybody else would get. Lastly, it still feels a bit weird when hot or cold food goes down as the sensation is all on my right side.

Mark

  • Surgery went well all as planned he has the surgery a week ago 28th and is home today, I thought he would be in longer but I’m sure they wouldn’t let him come home if he wasn’t ready. Feeling nervous now as it’s early days and it’s me looking after him. He does make things harder for himself and when I try to help he gets snappy and I just want to snap back and I know it’s hard for us both. Feel a little lost to be honest, waiting for the biopsies is the most worrying part again! 

  • That's about the fastest discharge I have ever read about on this site. He sounds like he is doing very well indeed. I certainly could not have coped outside the hospital 6 days post operation. My very best wishes to you both for his continued recovery.

  • Yes it does seem too early to me, can I ask if you had issues with coughing up stuff post surgery as he seems to be trying to get stuff out the little he has eaten comes back, he also says acid is burning his throat even with his prescription lansoprazole. All very new with very little advice given ! 

  • Hi I’m 12yrs down the line I personally think you should get in contact with your upper GI nurse straight away

  • That does not sound good. You need to discuss it with the hospital. Things may be perfectly ok but you need medical advice rather than my layman's  comment. Has he had post op CT scan ?