Eight years on.

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Hi all,

Just wanted to post some positive thoughts for all you folks out there having treatment or recovering.

I had chemo and radiotherapy for stage 2 and then the Ivor Lewis op. The op was eight years ago this last April, age 58. I'm now 66. Side effects, if I can call them that, are limited and minor. I can't eat large amounts of food in one go. It's a bit embarrassing some times as a resturant meal or food at family occasions can be difficult to finish and I don't like people thinking I've not liked it. On the other hand, grazing is easy. Family often joke that I always seem to be eating. I still have my pillows propped up in bed, but invariably find myself laying flat with only some minor aches and pains for a short while after getting up. My favourite hobbies are photography and hiking. The hiking doesn't cause me any discomfort other that what everybody else would get. Lastly, it still feels a bit weird when hot or cold food goes down as the sensation is all on my right side.

Mark

  • Hi Mark I am 12yrs down the line and yes I still have a lot of the same problems family meals out what I don’t like is watching people eat 3 courses while I have a starter and I am full I also get hot when I eat, I sleep propped up on right don’t get reflux unless I end up on my left Ian frequently at hospital for chronic anemia other wise not bad. 

  • My husband is having his operation on Monday 28th am

    im terrified, the thought of saying goodbye when he is taken to surgery fills me with dread and then seeing him for the first time after surgery x he also had to have a small section of his lung removed as a precautionary measure brings added risks the surgeon said and that makes me worry more x 

  • Monday is certainly going to be a long and worrying day for you. All you can do is put your trust in the skills and experience of your husband’s surgical team and take some comfort in the fact that he has been given the chance of a curative pathway. I wish you both well for the journey that lies ahead. 

  • Try not to worry he’s in good hands when I had the same surgery 12years ago on a Monday morning 5:30am - 9pm I was wide awake and very glad to see my wife and you are both going to start the journeyHeartback to health Heart️

  • Thank you so much for kind words it helps 

  • Thank you I know I need to be strong I am trying not to be weak for him… Pray tone1Pray tone1

  • When you visit for first time after op take someone with you x

  • Hi. I wish you both well for Mobday and I can only echo Cool Blue's comments. Your husband will in a few weeks time be so glad he has taken this step. Not an easy journey but many of us have trod this path before him.

  • Hes home tomorrow,  the chyle leak has healed, hospital heart has repaired slightly  we are now waiting for a cardiologist appointment. But he survived, the tumour initially was thought to be stage 2 but was in fact stage 3 and 6 lymph nodes out of 30 had cancer.   The tumour was so close to his heart thats why it caused problems. Now to start the road to recovery before mop up chemo. Thank you for listening,  I'm seeing the doctor myself tomorrow  for help with panic attacks never had them before but I think bottling everything up has really taken its toll. Wish I had reached out on here earlier x

  • So pleased to see that he is ready to come home. The strain on all partners who are supporting their loved ones is huge. Not surprised to read that you are suffering and need some help yourself.  The next stage will be adjusting to his new eating regime which is a whole new world. Lots of advice on this site is available so just ask if you need help. You will have read the words before - it is a marathon not a sprint! But you are both through the worst of it albeit that there are bound to be a few more bumps along the road. My best wishes to you both.