My husband was diagnosed in January spread to lung . Surgery not possible. Told over the phone not very good way to be told if there is a good way and told surgery not possible palliative. this following 3 weeks hospital stay with virus and endoscopy when red blood cells collapsed. he lost a stone and was very ill and took a long while to recover from the virus with terrible mouth sores. somehow we got through it.
Thank God the lungs were clear on 1st scan and the tumour shrunk after 4th cycle.
the Oncologist has not said how long he will have treatment we don't like to ask in case the answer is very bad.
We ( I think of us both going through the treatment ) had 6th cycle recently and next scan in August.
He has no symptoms he eats everything how is this the oncologist has not commented ?
I don't understand how he has no trouble eating when my heart breaks for those with similar diagnosis having trouble with eating.
He is very tired and it's a strain to get him to exercise but he is positive and happy.
i am the one who worries constantly.
Anyone with similar I would really appreciate comments on the prognosis and what we should ask
Hugs to everybody out there in our exclusive Club where we'd rather not be members
xxxx
My husband has had the first FLOT sessions which did test him and drained him physically and mentally, surgery booked for 21st July and it’s terrifying, his biopsies (3 lots of them) were all inconclusive so there is doubt in our minds that it is cancer! We heard this week that the lung nodule was benign so that was great news but there is so much doubt , there are days when he says he doesn’t want the surgery as he feels he will never be the same again and that scares me too. This journey is so hard and your story confirms that, I’m such a stressed out wife all the time whilst trying to be calm for him. This forum is a great way to off load your thoughts, questions, worries. Keep positive, we all need that so much and we are all here to support you both.
Dear Speyside
my primary tumour is in the same place I was diagnosed in June 2024 with the only symptom being acid reflux. As yet I have had no difficulties with eating other than that. I am told this is down to anatomy of where the tumour is in that it can be pushed aside to accommodate food. The situation will change as the tumour gets bigger .
regards
Well let’s hope ur treatment will reduce it to nothing we believe it can happen my husbands has shrunk and we hope will continue to and I hope urs shrinks to nothing too
what treatment are you on?
my husband is on immunotherapy and capecitabine tablets
he has had no acid reflux but very tired
we see a new oncologist tomorrow as current leaving so I’m going to ask bravely the question or should
love ️
Dear Speyside
I have had radical chemo radiotherapy with the intent to cure. Whilst the tumour was reduced there is residual malignancy. I have not, as yet, had any discussions with respect to systemic therapy because CT scans have not detected metastases nor do I have any symptoms.
Your husband is fortunate to be a candidate for immunotherapy, if fortunate is the right word in the battle we face? I know that I am not.
Best wishes for an effective outcome xx
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