My mum has been struggling to eat for the last few weeks, bringing up a white frothy fluid, and eventually after getting a CT scan last Wednesday they have advised that she has a lesion at the bottom of her oesophagus. She also has a lump on her chest which they say may be a lesion. My mum was on her own after the scan and they advised her that it was terminal.
A doctor from an upper GI team met with us on Thursday and advised that they could insert a stent to open her gullet and allow her to eat better. The doctor did not mention the lesions other than to say that they didn't feel they could do a biopsy as my mum may bleed too much. The stent was fitted on Friday and I now feel like we are in complete limbo, I have no idea what happens next.
She is still in the local hospital, is now extremely breathless, which she wasn't last week, and today has been told that she has a low white blood cell count and that they will put her on a nebuliser.
The doctor from the upper GI team (and the team I believe) are based in another hospital and have not been back to see her since the stent was fitted. I am constantly asking what the next steps are and not getting anywhere, we are getting so frustrated and it's impacting my mum's health further as she is in a hospital that don't seem that concerned with what is going on with her.
