Introduction

Hi there. I am glad you have found this group because it has been absolutely invaluable to me in supporting my friend. My friend (aged 68)  was diagnosed a year ago stage three andenocarcinoma of the eosophagus at the junction  and since had 4 flot chemo - the 9 hour surgery and then more flot. After surgery they advised that he had clear margins which was great but also 2/37 lymph nodes also removed had cancer but after mass panic the chaps on this page advised that local LN being infected is quite common and we hope that with what them being removed and the post op flot chemo that most  if not all of it has been gotten rid of.

He is doing really well. It is a new normal for sure but he is able to eat, he is maintaining a reasonable weight and although very tired still - he is living life to the full. Trips etc. He is having scans every 3 months to keep an eye on everything and his first one in March was clear.  Long may that continue. 

As I say this page is absolutely invaluable because there will be so many questions that you just cant seem the find the answer to elsewhere. What struck me is that so many people on this page are struggling but they will always go out of their way to support one another.

Feel free to ask any questions

Arrgh thank you it breaks my heart reading peoples journeys there struggles but also brings me a comfort that we are not on our own . Macmillan was surely sent by sone higher power unbelievable x

Hi Pricey. You are absolutely right, you can feel so alone with it but when you come on here there is so much support. Everyone one here truly "gets it" whether you are going through this or supporting someone who is. How are you doing?

There is so much to take in and and lv been changing his bottle and flushing it took us 2 hours couldn't get the bottle off but kind nurses at weston park help with a phone call. And injecting white blood cells they are things you don't expect to be doing but I feel proud that I did it.  It's all about supporting each other he's asleep at moment n I'm cooking ginger biscuits and tea. 

He's had terrible hiccups and wind tingly fingers and but has settled down and now constipated so got mess for it. All I can do is all his jobs at home in garden walk dog and be a supportive wife. Family are supporting us but it is a long journey anyone feel the same xx

Meds not mess

You sound like you are doing a remarkable job. The hiccups was a thing for my friend after flot chemo and also the tingly fingers - make sure your husband avoids the fridge freezer etc and my friend still feels the cold so always wrap up when you are outside would be my tip!  It is a long road. I think I would say just take it a day at a time. You are clearly a devoted and wonderfully caring wife. You will need support too and that is where we on this page can support you.  I have supported my friend on the journey your husband has started and I would really like to help you as much as you need.

I am sure many others on this amazing group will feel the same :)

Thankyou so much I will let you know how he's doing.  You definitely need family and friends are so so important and this time. There the one that get you through this journey xx

Im good thank you just spending time with family in Norfolk how are you 

Hi Sweetwilliam,

I was diagnosed with the same as your husband in Oct ‘23. Started FLOT in December, Ivor Lewis op in February followed by 16 days in hospital (8 of them in ICU as I had a bit of a complication) and completed my post op FLOT in June ‘24. I can’t even begin to imagine how I could ever have got through it all without the support of my wonderful wife. From driving me to and from hospital appointments and chemo infusions,  organising and picking up prescriptions, getting in foods that I would be able to eat, visiting twice a day every day when I was in hospital and taking on all the chores around the house that I would normally have done. Never underestimate the importance of your role as your husband’s support team. It will be as crucial to his recovery as that provided by his medical team. Good luck on the difficult journey that lies ahead. CB

Hi Cool Blue nice to hear that your recovery  is going well. I had to havec3 Hernia  repaired still having a bit of trouble with bile