Recently diagnosed.

Hi Jerome

Just wanted to say that if you have ANY questions regarding your diagnosis, treatment or anything else then please just ask as there's always someone in this wonderful group who will be able to give you an honest answer 

Thanks Bob. I'm currently awaiting an appointment to clarify what - if any - treatment I can have. I'll know better then, what to ask.

Thinking if you let us know how you get on ! 

Hi Jerome. 

Sounds like i'm in a similar boat to you. I was diagnosed March and am waiting to hear what treatment they can offer. It's a scary time but I've just been trying to keep busy and as normal as possible.  Are you managing to eat foods? 

Kirsty

Kirsty and Jerome …… wishing you both well. Waiting for results of tests and scans is really hard. When you have a plan in place it can be easier to deal with in many ways ….. at least that been our experience . My husband is week three post surgery. 
Geraldine xx

Hi Kirsty

I shall be having a short course of radiotherapy and I'm just waiting to hear when.

At the moment I'm eating OK.. ish, If I have softer food and chew thoroughly and slowly. 

Hope it all goes OK with you.

Regards Jerome.

That's good they've got a plan in place for you. Hopefully they'll get you a date for radiotherapy and all goes well.

Hi Jerome,

Thanks for reaching out, it can be such a scary time and I am pleased that you have found us.

If you have any questions which the forum is unable to answer, please call the Macmillan team, they have a great deal of information they will be able to share with you, their number and availability can be found in my signature. 

I hope that you get a date for the start of your treatment soon, and maybe more answers to your questions. 

Lowe'

Hi I was diagnosed in April T3N2M1.I am stage 4 with mets in my liver albeit very small.Im told it's inoperable and am on a Palliative pathway.Sounds grim doesn't it? But actually the word Palliative means management and is not the same as Terminal . There's people who are still living and working and enjoying life 5,8,10 years after a diagnosis like mine.Im lucky my tumour is HER2 positive so I'm about to start Herceptin and CAPOX.

I eat pureed food which because I have no appetite really just becomes " I must keep getting calories in " exercise.I use Wiltshire farm foods which is online and delivers.I drink as much whole milk as I can in smoothies and shakes and eat scrambled eggs for breakfast.Eating can hurt and early satiety is an issue but I'm doing ok and despite Cycle 1 being delayed ( admin cock up) I remain positive .The weather is lovely and I walk 2 demanding cocker spaniels every day..life is daily gratitude.x