Oesophageal Junction/Advanced Liver Mets

Hi Lulu 

This awful disease seems to be attracted to the fittest and healthiest of people. I was diagnosed on March 22nd 2024 five days before my 60th birthday. I'd been a regular gym goer, health conscious, intermittent faster with an incredibly healthy diet. 

His overall good health will hopefully help him in the treatment he will be getting.

Wishing you both the best of luck and remember if you have ANY questions do not hesitate to ask as this forum is absolutely amazing!

Anthony x

Hello Lulu. I'm sorry you're in this situation but pleased you found your way to this forum. Although there are some sad outcomes here, everyone understands how difficult this journey is so they are very supportive. Have any other treatment options been explored for your partner? My 63 year old husband was also diagnosed in August. He's been on Folfox, Nivolumab and is on a clinical trial. He has responded well and the treatment has bought him more time for now. His diagnosis was T4N3M1.

I hope your partner's MDT are able to achieve a turnaround for him. 

Meanwhile, as well as the support from this forum, you might find that the Macmillan counsellors are a great source of help.

Xxx

So very sorry to hear about your partner. For many of us diagnosis comes out of the blue and is devastating to ourselves and loved ones.  We share your pain.

You ask for advice about your job.

From my own experience, I agree with you your time is better spent with your partner.  I lost my husband when he was 53.  Metastatic melanoma was diagnosed in the February and he died late April. Aside from not being fit to concentrate on my job and emotionally wanting to be with him there was the practicality of looking after and nursing him.  
 
So my advice is to spend your time with your partner and cherish every day you have together xxx

Hi

Thank you so much for your message.  That’s how I feel.. and I needed to hear somebody tell me the same. I just feel that a job is a job in the grand scheme of things and eventually if I have to I’ll find another one, as I will have to work financially at some point.

xx

Hi 

Thank you so much for your message. The next couple of days will determine where we go from here with treatment.. so fingers crossed xx