New my husband diagnosed last week that oesophageal spread to lung

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I hospital with flu and found blood issue had endoscopy which identified 2 ulcers 1 ok the other cancerous in oesophagus spread to lung partially

havent spoken to oncologist only doc in gastric ward took 2 weeks to get biopsy back is that normal?

4 am can’t sleep worrying about appointment with specialist this evening to find out about treatment 

my husband very well before flu no symptoms of this problem at all now he’s recovering from hospital stay eating normally and regaining strength I’m scared

anyone out there on similar journey

  • Hello, I am not on the same journey, yes it is scary and worrisome and your mind races with all kinds of thoughts.

    Yes my biopsy took 2/3 weeks and then I met with the specialist, although it was not news that I wanted to hear it was also supportive to get a plan. 
    I was diagnosed in September 2023 with Oesophagus cancer at the junction, you may hear the term T3N2M0, this was mine, stage 3, lympnodes 2 and mastitis 0. 

    There are great call lines on here that can support and guide you both.

    Best wishes Jennie SparklesSunflower

  • thank you for your reply it's very helpful to hear from you. I hope you are well on the way to good health and normality xxxx hugs

  • Sorry to hear about your husband waiting for results is a most worrying time once you have answers and you know what your dealing with it should become much less worrying!

    I was diagnosed in October and although I was in hospital as I couldn’t get any food past my tumour it still took a month to get all the tests done and I did not start my treatment until beginning of Dec but on my last chemo today surgery planned for March as chemo again after that, so it’s quite a journey and going to take a while but he will get there I’m sure. 

    Hope all goes well for your meeting 

    sending hugs Tricia 

  • thank you for your reply and your support and sharing your experience its very helpful to understand others treatment i think it's a very stressful time for all and we share that feeling together.

    we understand surgery is not an option but this was from the gastroenterologist not an oncologistFlushed

    I wish you a recovery in the near future andd send my love to you

  • Your welcome there are a lot of people on this site that surgery had not been a option and have received treatment and are still with us do please don’t worry about that , I’m sure they will catch up with this tread soon and give your there experience several are like you wives sharing the journey with there husbands ! 
    the thing with this cancer is you don’t meet many people with the same and bring on this forum talking to people with the same condition had been a great help to me and I hope you will find the same as it can be very isolating and helps you get through s lot of the jargon the medical people through at you a can certainly understand more now and have my questions ready when required. 
    sending strength and hugs Tricia x

  • thank you for your support strength and encouragement I will take the tiniest glimmer of optimism and hope to share with others to help them 

    big hugs to you xxx

  • Yes my Hubby was diagnosed with this a few weeks ago,he has started chemo and soon to have radiotherapy aswell,He is not fit enough for surgery.I hope he continues to eat well we have to liqudise some meals and make smooth soup.Of course your worried  mine was quite well till this cropped up.Davids biopsy came back quickly .

  • thank you that's fast was he private I guess so.

    we go for tests next week which will be 2 weeks after diagnosis and hope to start treatment following week after the consultant has discussed it all.

    I wonder if anyone else has found the royal marsden slower than expected 

     I hope he continues to eat well recover his strength and get well and enjoy his life.

    to you and all wives out there crusading for our husbands I send love support and huge hugs xxx

  • Hello. My husband's OC is inoperable because the spread is too far away from the primary tumour. His had spread to lymph glands, including one in his neck, his liver and peritoneum. He was diagnosed straight after an urgent endoscopy referral by the GP. CT scan and bloods were the following week. CT showed the spread. The biopsy results took about 3 weeks. The analysis indicated that he would be suitable for a clinical trial. So, he started chemo, immunotherapy and the trial about 5 weeks after going to the GP. He is on his 8th cycle. All tumours had shrunk, from the 2 follow up CT scans. His 'blockage' cleared up within a few weeks. He gets neuropathy for a few days after the infusion, has mucositis, which causes pain in his mouth, and tires easily.

    Without this treatment, he'd pretty much be out of time now. Instead, we're enjoying a pre-booked skiing holiday in France with our 2 daughters, 19 & 21. 

    Please try to stay optimistic and not look too far ahead.

    Take care,

    Lorraine x

  • My mum was admitted to hospital with a chest infection in July.  She actually felt fine , just needed nasal oxygen and antibiotics for a few days . Was eating completely normally.  With chest infection was sent for x ray ... they then sent her for pet scan as noticed enlarged lymph nodes , then sent for endoscopy August . Was confirmed oesophageal cancer which had also spread to lymph nodes.  Surgery was never an option. She started chemotherapy in September and has had 6 cycles.  She is now for a scan next week to see if chemo has worked/helped . Which we are all nervous wrecks about . 

    This whole time she has never had any issues with her eating.  Though more recently has been having constant lower back pain , waiting on this scan to see if anything shows up .......

    Hope your husband gets seen soon by specialist.  This forum is great,  as I had and still have so many questions about oesophageal cancer and people on here help and support me allot .