Post Ivor Lewis oesofagectomy partner of cancer patient

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My husband had the Ivor Lewis oesofagectomy 2 months ago, he still gets cramps when eating and has lost a lot of weight, he’s just starting to be able to eat more but the high protein drinks the hospital recommended do give him pains. It’s been a huge psychological trauma for him to have lost his ability to eat what he wants, not to mention the disfigurement of the scar across his ribs. He has not been an easy person to look after, his spirits are low and I’d say depression is creeping in and out… it’s hard to watch as his partner.  Don’t see where the end to all this is and sometimes feel quotes despairing and wanting to run away and just have a normal life. Is anyone else experiencing this scenario, or has done? Thankyou os the chemo and radiation part was difficult but this seems more so… he was dia GB owes a year ago

  • depression

    Sadly Kate this is almost certain to happen after such a traumatic experience firstly facing cancer and all the uncertainty surrounding that, to them have surgery that is described as bad as an organ transplant. PTSD is challenging but can get easier given the right support. 

    The eating is one of the hardest parts surrounding this illness and just look at the forums a large number of posts are about eating, is unfortunately not going to get better over night, but you do learn how to adapt. 

    I hope you find the right balance to be able to live as normal life as possible and that will come in time. 

  • Hello Kate, I'm sorry you are having the difficult job of supporting your partner through his cancer treatment, with all the challenges this brings. Some patients take medication to help them deal with the low moods. Has your partner considered this. How about counselling for you both? I hope you are both able to adjust to the new normal in time and are able to enjoy happier times. 

    Take care,

    Lorraine

  • Thankyou for your words, it does definitely help to hear about people going through the same thing, things have got better since I wrote and the doctors say the outlook is much better now for my husband so that has been a super boost! 

  • Hi Lorraine, we both have good support from Alanon and AA as he is also in recovery and I in family recovery. So that has been a blessing. Things have been better since I write as we had some good news from the hospital in terms of his prognosis which has gone right up, they are offering immunotherapy so it feels like we’re out of the woods a bit although recovery from surgery is still difficult. Thankyou for your support