Hi all terrified to even be joining this group. My beautiful partner is 59 and last year I encouraged him to go to Gp due to heartburn. Dr prescribed Lanzoprazole and referred for endoscopy. Never heard anything back from that and assumed it was fine. Fast forward 16 months and he went for an over 55 check lung cancer CT which showed all clear but they did send a letter to say they found what they thought was a fatty lump in the oesophagus and they wanted him to come for an endoscopy. It’s all happened so fast he went for the endoscopy 3 days after the letter arrived and they are treating him under the 2 WW saying that it was due to an incidental finding. I was terrified waiting for him coming out but he came out unworried and I felt a weight was lifted, he said consultant had a good look around confirmed the tumour and got another consultant to come look. They both reassured him it looked 99percent fine and that there was no tumour on the previous endoscopy last year. They said he may need further investigation and a follow up call. This happened Wednesday gone, it was a different gastro consultant who called and asked what he understood, he told her the drs had said almost 99 percent sure it was fine. She said hmmm but there’s still that chance so has referred for full body CT and further endoscopy with biopsy. She then said we compared it to your previous endoscopy and it was there then but it hasn’t grown but it is very large hence the need for further investigation, the consultants the week before said nothing was there. I asked at this point would you tell us if you felt it was most sinister she said yes I would, but she wasn’t convincing and given the conflicting information km feeling little faith. I’m a nurse and know fatty lumps in oesophagus rarely happen. We only met 2 years ago after years of staying alone he’s my soul mate and the only gentle kindness I’ve ever known, selfishly 2 years of having him is not enough. have a 10 year old who worships him and him her. I sound so selfish to be saying this as this is no way about me but I’m bereft, already feel like I’m grieving for him, I’m crying and having anxiety attacks I can’t sleep or eat and feel helpless to support him the way he needs me too, I’m an empathic and gentle nurse and I do get upset about my patients but I’m usually more rational than I’m feeling. It’s just a terror in the pit of my stomach, I go to bed with it and wake with it. Please can anyone shed any light on the differing opinions he may have had and please can anyone advise best how I can control the physical symptoms of anxiety to be his best support and backbone. My heart is heavy for you all having to even be in this forum. Sending love and strength to each of you and your family’s. Thank you kindly claire.
Hello Claire,
I can't comment on the mixed messages that seem to have been given in your partner's case because my husband's diagnosis was pretty much immediate, from when the GP said what he thought was causing the symptoms, to the endoscopy consultant confirming a cancerous tumour, with the hope that it was curable, to the CT showing it wasn't. However, there are others on the forum who have had contradictory diagnoses and/or prognoses who may be able to advise.
I can relate to the extreme anxiety you are experiencing and the determination to be able to support your partner to the best of your ability. At my lowest, when his symptoms were worst and weight loss accelerating, I joined this forum. That was probably the best thing that has helped me, knowing that we're not alone in facing this challenge.
Looking after ourselves by having a healthy routine, doing normal things and not going down the rabbit hole of Google are also recommended. The first few weeks are tough, until getting conclusive answers and treatment starts.
Sending love,
Lorraine
Dear Claire. I truly wish there was an easy way to take away your terror and anxiety, and make you strong. It is a horrible waiting game. Perhaps one way to relieve the feeling of panic is to think about how precious you are to your partner and daughter, and how they need you. You’ve reached out on this forum which is already such a brave thing to do. Why don’t you phone the Macmillan service, or call in at your local branch and tell them your situation. Please look after yourself and try to do things together. I hope that things do turn out better than you feel at the moment. Julie x
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