Hi All,
Unfortunately, I find myself joining this group.
After six months and multiple appointments for gastric issues - along with losing nearly 20kg - I was finally referred for an endoscopy. It took another three months to get the appointment, and though it was on a ‘non-cancer’ referral, they found a 4cm tumour at around 37-41cm down. Thankfully, a proactive GI doctor had ordered a precautionary CT scan prior to the endoscopy, and I’m now set to see the cancer centre consultant on 7th November.
To add to the situation, my partner was recently diagnosed with lung cancer. She’s now nearly three weeks post-lobectomy, and although her recovery is progressing well - she’s off morphine and doing her best - she’s still not in a great place physically or emotionally to manage this new development.
I’m 35, with two young children (1 and 3 years old), and they’ve told me twice that the tumour is likely quite aggressive. My GP even shared a link with information suggesting a five-year survival rate of around 24%, so the wait until my appointment feels like a lifetime.
In the meantime, I’m adjusting my diet to include more polyphenols, starting intermittent fasting, and trying cold exposure (very cold showers) to boost my immune system as much as possible. If anyone has other recommendations, I’d be very grateful.
I’m also planning to push for a referral to the Royal Marsden, as I believe being treated in a specialist centre would make a difference, and I’m hoping to explore any available immunotherapy options.
On top of everything, I’m self-employed and only recently got my business going after a long period of nothing coming through the door. Because of my diagnosis, I’ve now had to let go of some much needed contracts, as I won’t be able to fulfil them, and now we’re preparing to sell our house and other assets to ensure my partner and children are financially secure through this.
Apologies for the brain dump, but thank you for reading.
Hello Kehilan,
I'm very sorry that you have found yourself joining this group. I've just read out your first post to my husband, who was diagnosed a couple of months ago. We're both sad for you and your wife, particularly at your age and having no family support nearby.
Another member of this forum told us her husband has been taking turkey tail fungus, and a friend recommended pure vitamin c. My stepson, whose Mum survived breast cancer, reckons that an alkaline diet is supposed to help.
We hope your treatment starts soon and that your prognosis is a positive one. There are those who have been able to have surgery to remove the tumour but others, like my husband, who have been told that the cancer is treatable but not curable, so offered palliative treatment.
Regardless, the outcomes have varied from one individual to another. This forum does offer hope and measured reassurance, comfort when it's needed, consolation too, as well as being a great source of information and advice.
Sending love,
Lorraine
Thank you Lorraine.
i’m sorry to hear about your husband.
Sadly, we also found out this afternoon that my mum died at some point last night - she had scleroderma and hadn’t been well for a while, but we didn’t think she’d be gone this quickly. Not my month, eh… it’s not actually sunk in yet, but it’s going to be a long week ahead, between oncologists, PET scans and funeral planning.
Thank you for the above pointers - I’ve been doing a lot of research on the alkaline diet, which is funnily enough nearly identical to the vegetarian keto style one I’m doing. And, I’m also taking both turkey tail and vitamin c (amongst a myriad of other vitamins and supplements that are supposed to help). Atop all the other bits, I’m also now looking at hyperbaric oxygen therapy (HBOT), which has shown some promise too.
Absolutely - I’m adding MCT oil to everything, cooking everything in lashings of EVOO, sticking nuts in whatever I can, and I’ve even started eating Tempeh and Tofu to up my non-dairy protein.
i had some really bad family news today, which has shaken me a lot, but hoping I can push through it and keep my motivation for the fasting and the diet up.
That’s exactly what I’m trying to do. I’m focusing on getting through this for my little boys.
I’m also going to try and get some therapy in place - I recently sat on the board of a big suicide prevention charity, so have a few psychologists in my contacts who I’m going to reach out to, try and stop this all piling up too much.
Well done you! I think that's what's important- arming yourself for the journey ahead. Mind and body are very much linked so you really do have to take care of both. If you don't have any luck finding a good therapist PM me I know a few. Funnily enough poetry is not my thing but a title of a book caught my eye called 'Wild Hope' by Donna Ashworth. I loved it. Someone somewhere along my journey recommended a book called Wintering by Katherine May. I'm still reading it. Its much about her life. I like the underlying concept of how various cultures prepare for the winter and how winter is a time of rest and getting ready to grow. That's what you're doing now getting ready and preparing. I found once I had a treatment plan, I felt much better. I think you will too.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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