New journey

hi tom also checking in, how are you finding the jpeg, currently sore throat and mouth, trying to get it less raw before radiotherapy starts monday and chemo tuesday, the thought of eating something tiny and normal, without seeing it again very quickly is giving me one of the things to cling to,

all the best

jules

Hi Tom sorry to hear about your diagnosis, the first stages are always going to be the toughest.

As for swallowing I had to avoid fizzy drinks and found a relief with milk, and lots of ice cream and milkshakes. I was also shown to freeze the fortisips into ice lolls. 

Hello Tom, My husband is on his 3rd cycle of Folfox and Nivolumab. He's also on a clinical trial for another immunotherapy drug but we don't know if it's the drug or placebo. Since his first cycle his swallowing problems have gone. The side effects have been manageable, mainly neuropathy, fatigue, occasional sharp pains where he thinks the tumour is and, the one that's getting worse, a sore tongue. His oesophageal cancer is T4N3M1, with the tumour at the GEJ, lesions on his liver and cancerous nodes on the peritoneum. 

He's feeling 'healthy' otherwise; staying fit with walking, cycling to the shops and jobs around the house. He has a lie down for an hour every afternoon but doesn't sleep. He's never been able to nap during the day but thinks having a lie down is just as good.

Let us know how your treatment is going. 

Sending kind thoughts and hope for an improvement.

Lorraine and Rod