so after routine mammogram revealed something, called back 27th sept 2023, told due to dcis, its coming off 13th october, right masectomy, then chemo, horrible reaction, 15 sessions of radiotherapy, then it all stopped, then the mental side kicked in. Kept asking ourselves what just happened, under pyschologist thank god, we did tell the breast oncologist several times weight falling off, no appetite, now 7 1/2 stone, and then the trouble swallowing kicked in. told its because i am now post menopausal and probably reaction to radiotherapy, wont be going back to him thank you very much, thank god my gp took it seriously, almost immediately in for the camera, to rule out that flipping C bomb, and 30 minutes later, hear those flippin words "i am so sorry, but i saw a 2cm tumour which i am 99% cancerous", lots of silent swears, sorry, then in for ct scan, now waiting for pet ct scan with dye which is broken at the churchill. just cant believe it, apparantely the masectomy op is a doddle compared to any surger for this, was home by 7pm same day. after tea and jam on toast!! just finally got used to how i look, and having the confidence to go out lop sided, but this is a new level of fear, anxiety, the unknown.
thank you all for updating your journey and where you are at, to say this has put us on our bums, is an understatement, but seing the real life experiences as they happen that you guys are updating scares us and gives us a little strength at the same time xx, just want this little wotsit out of me, not what we called it when leaving the hospital. at least we get this weekend off to do some car stuff, wait to see what next week brings, hugs to all from jules 56 and 3/4 years old, blimmin birthday 17th august, currently on hold
x jules
Hi Jules
Sorry to have to welcome you here after the journey that you have already been on, but you are very welcome and thank you for reaching out and sharing some of your journey so far.
The level of fear this information raises in anyone is extreme, so be hearing that this is coming at you again after the mastectomy must truly have you reeling.. So sorry that this is happening to you again.
Now the waiting game starts and I can only hope that you do not have to wait that long before you hear next steps and hopefully some relieving news.
Don't put your birthday on hold, enjoy every day and every minute as best you can, and I have my fingers crossed that you hear back from the MDT soon.
Thank goodness your GP was on the ball!
Take care of you
Lowe'
thank you so much everyone, the thought of staying in hospital terrifies me, but like you all say without this pet ct scan, all the treatmeent is up in the air, was hard on hubby first time round, but think this time its nearly too much so trying not to dwell on it for now, or scare him, this manning up is flipping hard, just have a few things we had booked to say goodbye to the last year, brilliant, so hoping before any treatment starts i get to put that lop sided dress on for my birthday, do the boat show in sept, which is when i was normal, before we went back to breast unit 27th sept, but know all this is not in my control. christ is knackering, and when we are arguing, ignoring each other, thats worse than the new diagnosis!!, tomorrow will be a more positive day , and thank you all means a lot, wish i had this cancer first then the breast but hey, 1 year mammogram for remaining breast on 5th sept, not even on the radar , bigger fish to fry!!
sending hugs and thanks
