Been through chemo had asophojectomy opp. Had radiation treatment. Now pancreas not working. Loosing weight now. Can't get creon dose right, increasing amount of creon but just get dioreah. Anyone else in same situation or can offer advice. For me this is the worse part of it all.
Hi Quaver and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It sounds like you're having a tough time at the moment and I wondered if you'd spoken to your cancer nurse specialist (CNS), sometimes referred to as a keyworker or Macmillan nurse, about getting the creon dosage right.
I'm not a member of this forum but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
