FOLFOX used to treat Oesophagus Cancer

Hello Penny01

I hope you do not mind me responding as I had a different type of cancer to you but I noticed you had not yet had a reply. Hopefully this will bump your post and someone who has had FOLFOX will now see it and reply.

In the meantime do please give the Support Line a call and speak to one of the nurses who will be able to give you some more info about the chemotherapy.

Here is a link to some information that may also be of help.

FOLFOX | Macmillan Cancer Support

I wish you well with your treatment and if there is anything else you need, then please do ask.

Jane

My dad has just started Folfox. Only had one cycle so far so not much to say yet. I know he found the first 4 days the hardest. Take care xxx

Hi Penny 

My husband started on Folfox chemo, he reacted to it quite well with only minimal side effects.  

Lowe'

Hi Lowe,

How is Dal doing with his new treatment?

Hope he is doing well  

Angie 

Hi Angie, 

Thank you for asking... I am sorry I have been out of the loop a little while, things are a bit topsy turvey at present..  Dal has had his treatment cancelled again, I will update our blog for all to read if they are interested... Thanks for pulling me back on here, I needed that. 

How are you? I have just quickly caught up on some of your posts, so sorry that some of the chemo rounds have been tough going for your husband we can only hope that those negative moments are worth it, as the treatment works its magic.

Lowe'

My husband is being treated with FOLFOX - they started him on something different (forgotten quite what) when chemoradiation was an option but he was stopped after three rounds when they decided radiation would not be possible as the cancer was in a lymph node. Since then, he has had 5 rounds of FOLFOX. It does knock him back with fatigue but fortunately nothing worse other than feeling generally grotty. The diarrhea pre-dated the chemo and the grumpiness is just normal.

Hi Lowe

I hadn't seen you on the forum for a while so wanted to check all was good.

Is Dal on a new treatment now?

Yes Tony has had some tough times but is getting through it, Cycle 6 on Thursday and then a break from treatment which worries me as the chemo is doing so well.

Its just the uncertainty all the time.

How do you cope with it all?

Angie xx

I really appreciate you reaching out Angie, truly, Thank you. 

I updated our blog, so you can catch up on the latest there.. (just follow the link on our profile, newest posts always on top) 

I am pleased Tony is managing to get through his treatment, I know that many writers on here have mentioned 6 cycles and then a break, to be honest that never happened with Dal, he was put on Herceptin and fluorouracil at around the 6th cycle and had treatment every 2 weeks.. so I understand your worry, Dal's treatment is currently deferred, so I feel that similar worry too. 

It is uncertain, and nobody has any answers but personally, the only way I can cope is by acknowledging that if we look close enough, no-one knows, for any of us, it has always been uncertain, but I took for granted that we would go on forever...  I can only hope that as long as we go on, we are both as healthy and contented as we possibly can be. .    I know it is different, when someone has a diagnosis, and to be honest I don't know how Dal deals with it so well, but that is how I cope!

I have sent a friend request as I am conscious we are on Penny's post

Lowe'