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  • Hi Kaya, a sad welcome to the forum. You're in the right place to get information and advice from others on the same journey. Please don't go on doctor Google. There are some scary stories on there that are not true.

    I have had OC and finished treatment over Christmas 23.

    I'm surprised at how quickly you were offered a pet CT scan. I had to wait weeks for mine. I was told it was likely to be cancer at the time of my first endoscopy but had to wait several weeks for a definitive diagnosis. However each patient has a different journey.

    If you click on my name it will take you to my profile which I wrote in the form of a diary. It may help you see what's to come and the timeline of my own journey.

    Good luck going forward. It's a bit of a roller coaster ride but very doable. Take it one step at a time overcoming each challenge as it comes along. Your looking at about ten months of investigation and treatment but your looked after wonderfully. Take full advantage of the specialist cancer nurses for any worries or questions you may have.

    Best regards Geo.

  • I'm sorry you have to find yourself here Kaya. I understand how you are feeling, my husband was diagnosed with oesophageal cancer at the beginning of the year. Following further tests we are, like you, waiting for a meeting to discuss stage, severity and treatment. There are a few of us here who are at this stage of waiting. It is perfectly natural to feel sad, emotional and scared, you and your wife have received terrible news. I have only just joined this forum myself but I can tell you that you will receive wonderful support and information here from members who have been through this or whose partners have. Do read their stories. 

    Very best wishes to you and your wife



  • Hi Kaya. I completely understand both you and your wife’s emotions at the present time. I was diagnosed in May last year. It’s hard to put into words how to cope with such news. I could not have coped without the support of my husband, who was my absolute rock throughout, and my lovely son and daughter. I decided to tell only a few people as I felt it gave me more control, but everyone is different and deal with it their own way. I am now over all the treatment and operation and doing really well. When I was first diagnosed I used to read loads of personal (positive) accounts of how people coped with the diagnosis and I used the Oesophageal Patient Website and the MacMillan forum to help me feel not so alone. During my recovery period, I posted my own blog (click on my user name) which you may find of use. It is such early days for your wife and yourself. I hope that appointments and hospital contacts come through quickly for you and I would urge you to phone and chase, if you feel you are not being contacted quickly enough. Thinking of you both, Julie.

  • Thank you all for you kind words and advice.We have rearranged the PET scan for 26th,so will hopefully have a clearer picture after that.

  • Well we had the results of the PET scan and it was not the news we wanted or expected.The cancer has spread pancreas and lymph nodes.Stage 4.İt is not operable or curable.All they can do is buy us some more time(EST 18-24 m)

    My wife is starting chemo and immunotherapy next week and I hope I am able to help her cope with the treatment.İ am terrified of the thought of her being in pain and hate the thought of what this terrible disease will do to her.

  • Dear Kaya86. I am so, so sorry to read your post. You are both very brave to come back to the forum and share your news. The thing is no one really knows how things with pan out, and I truly hope that your wife’s treatment will not be as bad as you both think it might be. There might be things along the way that surprise you and give you hope. Thank goodness you’ve got each other. Thinking of you both, Julie

  • So sorry to read your post x Cry  I hope that you can enjoy lots of time together . 

    Sending positive thoughts.


  • Dear Kata86,

    I am so sorry that you have received this news. It is what all of us on this journey dread most. It is very courageous of you to come back on this forum and share it. I know that it will be your love and support that will be so important to your wife in the weeks ahead. 

    1. We had the same news about my dad on Saturday, his endoscopy notes are on the system. His Gp told him yesterday, waiting for scan to see if it has spread. It feels so long as he can feel his in his chest