Hello all. New member here so thought I’d share my experience so far. 2021 I had a referral from my GP due to symptoms of feeling bloated and struggling to eat certain foods. It all began with a colonoscopy which came back as some mild IBS. I was then sent for a CT scan with contrast just to be sure of nothing else. It came back as I had thickening of the esophagus wall. Appointment booked for Endoscopy to investigate. I had the Endoscopy and was told they had found a small nodule at the GOJ and I also had an hiatus hernia. Biopsies were taken and they came back as High grade dysplasia. I was then referred to another hospital. At this point we went into full swing coronavirus so understandably things got delayed so I waited and waited. Fast forward to September this year and I still hadn’t heard from any one and I’d started to feel full very quickly when eating and noticed my clothes getting baggier. Went back to my GP who again referred for testing. I had a phone consultation and they couldn’t believe I’d had no contact from the referral 2 years previous and it was decided I better have the procedures re done before any thing else. The CT with contrast appointment came first followed by another colonoscopy and endoscopy. They found a couple of polyps in the colon which they removed at the time and said the growth in my esophagus was still there so took more biopsies and it would take a couple weeks for the results. I patiently waited 2 weeks and heard nothing. A week later and something told me to check my NHS app. There I found a letter addressed to my GP with my results and that’s how I found out I had adenocarcinoma of the esophagus. Not a great way to find out and to be honest I was emotional but also angry!! It took me days of ringing around trying to get answers but got no where so emailed a letter of complaint to the hospital explaining how I’d found out my diagnosis and how I’d hit a brick wall with getting answers with what happens next. PALS got involved immediately and a full investigation started. I’m now laying in bed struggling to sleep as I have my first appointment tomorrow with the consultant after they held a MDT meeting. Do I find out options to treat at this meeting. Will I find out the staging or is this just to tell me what I already know and there’s more tests to do. Sorry for the long rant but I’ve felt the need to get it out there and off my chest
