Hi

Hi Scrappydo,

Very sorry to hear about your personal circumstances. 6am is a very lonely time, no matter how many other people are in the house. I have often spent the wee small hours reading a lot about the disease and other people’s experiences with it. I have found Geoferret’s diary to be very helpful to get an idea of chronology and timescale of events. Have to remember, of course, that everyone’s journey is bound to be slightly different and you won’t really know yours until you have your meetings with your MDT. In the meantime, you should definitely get back in touch with your GI nurse and ask her/him to explain things again. That’s what they’re there for - to explain things, offer advice and provide emotional or any other support you need. Have a notepad beside you when you call to scribble things down on. Good luck

Hi Cool Blue

Please don't feel sorry for me being on my own, it was my own making, I put him out  and now I can get on with my life. Yes 6am is a very lonely time of the night, although I love crafting and scrapbooking so I just get up and keep myself busy. I was in two minds whether to come on here, because I thought maybe they have it wrong and I will be okay and I don't want to be bothering folks who don't need to be bother because they have enough on their plate. However my thinking now is thank God I did because I have had nothing but kindness here and truth I must say. Funnily enough I had started a little diary yesterday before I came on here and in the notebook at the bottom of every page it says, "If you can dream it then you can do it"  Well I dream it so I will do it, no matter what. I think that is a good idea of yours to get in touch with my nurse again because I really would like to hear it all again so to speak just to make sure I have not imagined it. I will keep a notepad by the bed that is a good idea thank you for that. I will do that from tonight. Thank you for taking the time to reply to me it is very much appreciated.

Hi Scrappydo, 

Well done in taking the first steps in posting on the forum, I have read through the posts and I am pleased that you have found so much support already, that is exactly what we are here for.

My husband was not suitable for surgery either, but i think this is more to do with the additional cancer areas they had discovered, which included his Liver and Lungs.  Have you yet been given any more information other that adenocarcinoma, as that alone is not normally a reason to refuse surgery?

I like that your posts have a definite air of positivity within them, that, in my opinion is a great thing, as scary as this all is, your fighting mentality is going to take you far. 

The forum thankfully is 24/7 so should you find yourself awake and needing to clear your head a little, you can always pop on here, we all learn from the experiences of others and it is a good thing to be able to share and offload!

Best of Luck moving forwards with treatment.

Lowe'