Hi everyone.
New to the group and would appreciate any advice as at the moment I am in a state of shock and fear. I am more positive since learning my treatment plan but still very scared.
I was diagnosed with Squamous HGD (pre cancer) in April. I have had PET and CT scan which show no tumours but advanced endoscopy and biopsies show the pre cancer cells. My only symptom has been persistent heartburn . During endoscopy my oesophagus split and I had to have 5 clips inserted. Following this I was told my oesophagus is flimsy and they would be unable to perform any resection. My choice is to remove oesophagus or monitor with certain prognosis that this will turn into cancer
I decided to follow their advice and had pre-op and spoke to surgeon last Wednesday. They are happy that this surgery will be a cure. I am listed for the operation on 15 June at Royal Liverpool Hospital.
I feel like this whole situation is surreal and I feel permanently sick with fear.
Any support would be appreciated. I just don't know what to expect and right now feel I don't know how to get through this.
Thank you
Hi BM59,
A sad welcome aboard. It sounds as if you've been treated first class and in a very timely manner.
Get that op done and get rid of those abnormal cells. It's a big op and your going to have some tough times ahead but you'll come through it and put the other side. Like the rest of us you're very poorly but you will get better. Don't Google and don't think of any other outcomes.
Keep posting on here where others going through the same can advice and chat to you.
Best of luck and loads of good wishes.
Geo.
Hi Geoferret
Thanks for your response. Yes I can't fault how quickly the hospital has been on to this. They just want to deal with it before anything further develops.
I guess I'm lucky as I don't need any treatment before the surgery and they are not expecting anything after.
After speaking to the surgeon I do feel more positive and he certainly is, but he did not play down how big an operation and recovery this is
It's so good to know I'm not on my own in this, and that there are others out there with the same anxieties who are willing to share this with me
I will keep posting. Maybe my experience can help someone else
Hi ..It certainly is a surreal and frightening experience ..I can only speak from my husband’s experience with the surgery (he unfortunately did have cancer so chemo was thrown into the mix too ) Now five months after the surgery he’s satisfied it was the right route for him and he’s now happy to be (in his words) ..’rid of the blasted thing’ and starting off again with hopefully a clean slate ….Yes it’s life changing major surgery but in his experience the surgery wasn’t the ordeal he had built up in his mind and his care whilst in hospital was second to none …The recovery is long and requires patience and determination..but in our opinion and now five months down the line ..it is so worth having if offered as an option ….Everyone recovers at their own speed ..and you will find a way to come through it all ..He’s now around 90% recovered from the surgery and any issues he did have immediately afterwards seem to be settling ..but he’s still dealing with issues caused by the chemo which I think I’ve mentioned before in other posts …..All I can say is trust your medical team ..they will 100% look after you ..and follow all the advice they give you as it’s tailored to your individual case and it will help you throughout your recovery …,and don’t forget we’re all behind you on here too with lots of support and advice from everyone who has been through or are still going through their own unique experiences …..Wishing you all the very best of luck with everything……regards J
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