Surgery in June

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Hi everyone.

New to the group and would appreciate any advice as at the moment I am in a state of shock and fear.  I am more positive since learning my treatment plan but still very scared.

I was diagnosed with Squamous HGD (pre cancer) in April.  I have had PET and CT scan which show no tumours but advanced endoscopy and biopsies show the pre cancer cells.  My only symptom has Beebeen persistent heartburn .  During endoscopy my oesophagus split and I had to have 5 clips inserted. Following this I was told my oesophagus is flimsy and they would be unable to perform any resection.  My choice is to remove oesophagus or monitor with certain prognosis that this will turn into cancer 

I decided to follow their advice and had pre-op and spoke to surgeon last Wednesday.  They are happy that this surgery will be a cure.  I am listed for the operation on 15 June at Royal Liverpool Hospital.

I feel like this whole situation is surreal and I feel permanently sick with fear.

Any support would be appreciated. I just don't know what to expect and right now feel I don't know how to get through this.

Thank you 

  • Hi BM59, 

    A sad welcome aboard. It sounds as if you've been treated first class and in a very timely manner.

    Get that op done and get rid of those abnormal cells. It's a big op and your going to have some tough times ahead but you'll come through it and put the other side. Like the rest of us you're very poorly but you will get better. Don't Google and don't think of any other outcomes.

    Keep posting on here where others going through the same can advice and chat to you.

    Best of luck and loads of good wishes.

    Geo.

  • Hi Geoferret

    Thanks for your response.  Yes I can't fault how quickly the hospital has Beebeen on to this.  They just want to deal with it before anything further develops.

    I guess I'm lucky as I don't need any treatment before the surgery and they are not expecting anything after.

    After speaking to the surgeon I do feel more positive and he certainly is, but he did not play down how big an operation and recovery this is

    It's so good to know I'm not on my own in this, and that there are others out there with the same anxieties who are willing to share this with me 

    I will keep posting. Maybe my experience can help someone else 

  • BM59 

    I can only echo  GeoFerret  reply go with the op its going to be a long recovery to better things 

    Stay Safe everyone 

    Nic nac

  • Hi ..It certainly is a surreal and frightening experience ..I can only speak from my husband’s experience with the surgery (he unfortunately did have cancer so chemo was thrown into the mix too ) Now five months after the surgery he’s satisfied it was the right route for him and he’s now happy to be (in his words)  ..’rid of the blasted thing’ and starting off again with hopefully a clean slate ….Yes it’s life changing major surgery but in his experience the surgery wasn’t the ordeal he had built up in his mind and his care whilst in hospital was second to none …The recovery is long and requires patience and determination..but in our opinion and now five months down the line ..it is so worth having if offered as an option ….Everyone recovers at their own speed ..and you will find a way to come through it all ..He’s now around 90% recovered  from the surgery and any issues he did have immediately afterwards seem to be settling ..but he’s still dealing with issues caused by the chemo which I think I’ve mentioned before in other posts …..All I can say is trust your medical team ..they will 100% look after you ..and follow all the advice they give you as it’s tailored to your individual case and it will help you throughout your recovery …,and don’t forget we’re all behind you on here too with lots of support and advice from everyone who has been through or are  still going through their own unique experiences  …..Wishing you all the very best of luck with everything……regards J 

  • Hi BM59 my husband has had chemo and radiotherapy which finished about 4 weeks ago. Currently waiting for an operation at the same hospital. Can I ask when did you find out the date for yours? We still haven’t heard when this will be.

    many thanks

  • Thank you.  Your reply has helped. I know I'm making the right decision.  As you say the medical team know what they are doing.  My plan is to take recovery one day at a time. Hope your husband continues to improve 

  • Thank you for your response.  It has helped a lot. As you say I know I can trust the medical team.  As for recovery I'm going to try to take each day as it comes.  That's the plan!!  Hope your husband continues to improve.

  • I found out last Wednesday when I saw the consultant. Hope your husband doesn't have to wait too long.  

  • Also just to say I had been referred from another hospital and this was the first time I had seen a consultant at Royal Liverpool, so hopefully you will get a date at your first appointment x

  • Had a call from the hospital on Monday.  Surgery tomorrow.  Someone not fit enough to proceed so I'm in. Terrified!!!