Just starting

Hi so sorry to hear your news.  The only experience of treatment was my husband had FLOT chemotherapy before he had the operation.   He still has some side effects after 12 months.   He had very bad side effects whilst having chemotherapy.   The usual.   Sickness,  diarrhoea,  dizziness,  numbness in hands and feet,  tiredness.   Which to some extent still has.  Therefore he was advised not to have second round of chemotherapy after his operation.   Unfortunately I am not familiar with your husband's treatment plan.  So maybe my husband's experience is not helpful.   Good luck 

Although I'm not the same as your husband, I had FLOT chemo prior to surgery and had very few problems. Sickness, nausea and painful indigestion was treated with pills prescribed by oncologist. During first 2 sessions of chemo I still managed daily walks and made it to the gym a a few times. It was only after 3rd session that fatigue really set in. Couldn't go to gym anymore and cut down on walks but still managed to potter about the house doing light tasks. I have heard some positive stories about palliative care patients who have lived far longer than statistics said. And some palliative care patients' cancer has gone into remission. So never give up hope. There are some accounts of survival of inoperable patients if you look into older posts on this website. I'd urge your husband to give the treatment a go. You don't know how it will affect your husband until he tries it. Stay positive and don't listen to gloom and doom stories.

The fatigue and other side effects were gone altogether a month after last FLOT treatment and I was back to normal.

Thank you both for your comments..chemo bag packed for tomorrow..going in with a good frame of mind

Sounds like you have made the right decision.   Good luck x

Hi Pjae

Just seen your post. how are things going? My husband is in similar position and changed from CarboX which he had in December but reacted badly to and ended up with sepsis, to Folfox which he started in February. It seems his tumour is not responsive to immunotherapy. He is tolerating Folfox much better and we have even had a couple of ‘normal’ days away between cycles. 
Hope things are on an even keel with you. It’s pretty **** it has to be said. 

Hugs

Good morning Sixpence

Thank you for sharing. Pleased to hear your husband is now on a better treatment pathway. Sounds like those couple of “normal”days away were  well deserved.

My husband will be having his 3 cycle next week and so far he is tolerating it better than expected. Constipation has been his only issue, but that can be readily remedied with a Laxido cocktail.

Fatigue is starting to set in.

He feels it might be helping tho. He feels the mass/metastasis in his neck is shrinking. It is no longer painful and he can now sleep better.

He has never had any gut or swallowing issues, so hard to say how the oesophageal tumour is responding.

He has a scan in two weeks..we are hopeful 

Hi Pjae

• Sorry you're going through this.  I'm sure you're both devastated. I just want to reiterate what the others have said... the consultants will give supportive drugs to help with any negative side effects from treatment.  Don't be afraid to contact the clinic if you/he have any questions or concerns.  I found it reassuring when I went through FLOT. I've heard of several people whose cancer is in remission after being on immunotherapy.  There is a little group of people with oesophageal cancer who discuss various treatments and are quite knowledgeable.  They're on the 'smartpatients.com' forum. They may be able to help as they have much collective experience. 

I hope it all goes well.