Neuroendocrine Tumour

Morning Joden, are you in the right group if the cancer is in his bowel? Or does he also have a tumour in his osophagus?

The process for when my cancer was found was I had an endoscopy because I was struggling to swallow. During this they found my tumour as they found the lump they took a biopsy there and then. About a week later I had a CT scan and then a further week later a PET scan. After that I met my oncologist another week later and they come up with a treatment plan. I don't know the process for bowel cancer people in that group will be able to give better advice as the journey and side effects can be very different.

Hi Joden, 

NETs - neuroendocrine tumours are a different cancer to the others- it’s rarer. There’s a fab group on fb - neuroendocrine tumour uk support - many people in there who have had NETs in the small bowel. They’re very friendly so pop over and they’ll be able to help you. Xx