Just want to say a big hello to everyone on here. My husband has also been diagnosed with oesophageal cancer, stage 4. Spread to the stomach, lungs and liver. Not good to hear however, we are staying positive and hope the chemo will help.
My husband has lost so much weight due to being unable to eat. He was admitted to hospital and spent a month there on IV drips. He had a stent fitted and that has helped as he can now eat soft foods. The problem is he is either in pain or has a dodgy stomach. He has found he is intolerant to the Fortisip drinks and Complan. I am in the process of trying to fatten him up!!
He starts chemo tomorrow so we are keeping fingers crossed .
I know this online community is so supportive as I had breast cancer 4 years ago and the online community was a godsend.
We also have a fair idea of what chemotherapy holds for him.
Hi Again
I was half way through responding to your other post and saw this one (I have a back to front way of doing things ) so I kept my other response short so that I could welcome you to the forum officially here.
I am so pleased that you reached out, this is a great, supportive forum and we are here for you.
Your husband seems to have been through so much already, fingers crossed that the chemo enables things to get a little easier eating wise. I am sorry to read that he is going through this and also that it "seems to be happening all over again" but last time it was you, I am sending lots of positive vibes and strength to you both.
What are you managing to achieve food wise for your hubby? where is he having his treatment (if you don't mind me asking)
Please feel free to add me as a friend, keep in touch and reach out, if I can help in any way let me know.
Good Luck Tomorrow..
There are loads of bits of advice on Macmillan as I am sure you already know but if you need any directions to anything.. Shout!
Lowe'
Hi Lowedal Sorry for the late response.
Many thanks for your messages it’s nice to know you’re not on your own!!! However, the activity on this forum is very quiet compared to the breast cancer one!!!
John has had his first chemo, all went well, not too many side effects at the moment and we are back today to have the 48-hour pump removed. He is very lethargic mainly.
Eating is a problem, not for him but me! I don’t think he is getting the right vitamins etc but on the other hand I have said to him to listen to his body! He will eat soft cakes, jacket potato, soup and crackers with soft cheese. Bananas and cereal a lot of the time. He is really just trying to put the calories on as he has lost so much weight, and to also give him some energy.
He was on Fortisip shakes and they did not agree with him as he was either full up from them so didn’t eat or, mostly, he was sick. The hospital has advised not to drink them any more as they are mainly for calories.
He is having his treatment at the Princess Alexandra Hospital in Harlow, Essex. We live in Hertfordshire and that is our nearest hospital for treatment. I also had my treatment there and the chemo unit was excellent, cannot fault them at all.
So, he will have a week off and then the merry go round starts again of blood test, appointments etc. All good fun and I’m trying to fit in work as well.
Take care and will speak again soon.
Edwina
Love Edwina xx
Back here again for hubby diagnosed with oesophagus cancer - Sept. 2021
You’re allowed to scream - You’re allowed to cry - But do not give up
MAMMOGRAMS save lives, I'm the proof!!!
7 rounds of chemo, finished 30th May 2018. 15 zaps of radiotherapy, finished 26th July 2018.
I Survived .......... Sadly my hubby did not.
I know that hospital well
This forum is quiet on occasion, I have my own thoughts as to why that is, especially in relation to the breast cancer forum, but we have a regular group of responders who help out where they can. I do hope you have felt supported here.
The 48 hour pump must leave your husband feeling quite exhausted, is he managing to sleep with it ok?
Thinking of you both
Lowe'
Hi, regarding the comments about this section being quiet, I agree with you. When the site went through a major upgrade about 2 years ago it became extremely difficult to get logged on. I think a lot of people just gave up trying to get logged in. The layout of the site was made much more difficult to navigate and find things compared to the old site. Even now I have to click or enter about 7 stages to get to this page. I think it was Albert Einstein who said" To take something difficult and make it simple is intelligent. To make something difficult that is simple is not". That might not be the exact words, but close. Kind regards Frank.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007