Hi. I’m new to this group. I am a carer for my Grandma. I don’t see myself as a carer she is so special to me she brought me up with grandad and gave me the best childhood I could ask for, so of course I am going to look after both of them as they get older they are my world.
we had a appointment 6 weeks ago and the consultant he was so happy with how much the tumour has shrunk in the oesophagus we felt so positive then a week later we found a lump at the base of her skull went to the docs he thought it was a cyst but sent us to have a ultrasound and biopsy just to b safe.
We are truly heartbroken the biopsy has come back as the same cancer as what is in the oesophagus we have since found a lump on her ribs.
Grandma can not swallow she is loosing weight so fast down to 6st now after a lot of asking she is having a stent put in next week to try and help.
We met the palliative care nurse today she is very nice has sorted out patches for the pain and liquid morphine.
I’m staying strong infront of my grandparents but I’m struggling when I’m at home I cry so much just feel so helpless.
If you have read all this thank you X
Hi there!
I am really sorry to hear about your gran.
I have been the patient but not the carer.
I can't imagine what you are going through and we as a family haven't discussed any of the treatment that I went through. I can't remember much either. The kids don't really want to.
I am not quite sure if this was correct.
We are just trying to deal with the present issues that I face nowadays.
I do get some snippets of their thoughts and views sometimes for example last year my teenage son talked about death a lot and about me passing away with covid. He was only ten when I was dealing with the big "C" and went through a lot.
I will never be able to truly appreciate what family members go through while we face this disease.
I can only send you virtual hugs and be strong and positive.
Regards,
Rf2k18
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