Haven't posted in a while.
My husband passed away on Wednesday evening 24 June 26. Age 73.
He was diagnosed in Sept/October 2025 and we were told 18 months. We managed 10.
We knew that they couldn't cure his cancer but even so the 6 rounds of chemotherapy never touched it. He started radiotherapy in May and had 3 weeks of intensive radiation. This finished on the 3rd June. By the 7th of June he was in hospital with a broken hip. He didn't fall, he just turned and cried out in pain.
16 days in hospital with variable care. He never ate and hardly drank as he was now suffering from the effects of radiotherapy. This was never addressed.
Cancer was now in his liver, adrenal glands, hip bones and abdominal wall. And of course still in his oesphagus. Ascites and fluid around lungs.
After making a huge fuss over his lack of palliative care, we got him home on Monday night 22nd June.
His wish was to die at home. Horrifying and as scary as it was, I made a promise to him which I was able to keep.
If I could turn back the clock, I would say that none of the treatment in his case was worth it. I wish instead we had visited all the places he wanted to see and that he got to do all the things he wanted. Instead we had 10 months of hospitals appointments... One after the other. No quality of life for 10 months.
I will miss him forever. My heart is broken. My faith in the medical world gone!
snowsie so so sorry to read this, its a conversation that i have had with other sufferers, the what if, and could i do it all again. Although we always tell ourselves life is too short, once you are on the treatment treadmill it just puts you back in that awful place.
Your sad but wise words rings so true, and to grant that final wish, i cant imagine how you did that, but god love you that you did., reach out on here if you need support, to rant, to talk, this is a family we never wanted to join, but my god, its got me through so much when my husband just couldnt deal with the cancer when we just got over my masectomy.
wish there was a way to send a virtual hug, take care, and reach out when you need help,
xx jules
Thank you Jules. My husband always said that he would never have chemotherapy because cancer gets you in the end. But like you say, once treatment starts you just keep going with it. Oesophageal cancer is one of the worst and always found so late. I feel for everyone going through it. x
Before I started my journey I always said that if I was not on a curable path I would rather spend my last year doing things I always wanted to do rather than 18 months of treatment hell !!
But a lot of people on here have done well with treatment and have gone on to live far longer than first predicted so it’s a hard call and as Jules says once treatment starts you just hang on hoping for the best !!
I'm sorry that your husband final 10 months didn’t work out for you both and I can understand how you feel at the moment but I’m sure they wouldn’t of treated him if they didn’t think there was a chance, I was one of the lucky ones able to have surgery and doing fine at the moment but as most people who have had cancer will say never say never !! Take care Tricia xx
My condolences for the loss of your husband.
Your experience and advice is hard to read but it is very true. Unless one is fit enough and eligible for surgery the chances of cure are close to zero.
For those of us with no hope of cure (and especially those who are not eligible for targeted or immunotherapies) we face having to make difficult decisions balancing quality of life vs the slim chance of prolonged survival. The only certainty being that as soon as we embark on chemotherapy our quality of life will be impacted.
I thank you for your honest contribution to this forum.
Thank you Rosiee.
I didn't know if I was doing the right thing by sharing his awful journey. But it was our reality and it really happened.
His cancer symptoms didn't appear until the tumour was very large. No surgery offered and no immunotherapy. We were told at the start it would spread and it would be aggressive. I once heard a Dr say that we always give everyone chemo because it's all we have. The radiotherapy was brutal and I think this should be made very clear when it is being offered to try and reduce a very large tumour.
I do wish those suffering with this horrible cancer all the best. The forum has helped me in many ways...coping with symptoms, success stories and advice. For that I am very grateful.
X
So very sorry for your loss ️
I’m sure you’ll receive lots of support on here when you feel you need it .I don’t come on as often these days but this forum was an absolute God send when I needed it .
I lost my Dad almost two years ago to metastatic cancer .He was willing to take any treatment that could be offered but sadly he passed whilst we were still waiting for some test results .Our only comfort is he passed at home being cared for by the people he loved the most . We were left with a lot of What ifs after he passed too .Shortly afterwards my Mum was diagnosed with Barrett’s oesophagus .How this pans out for her in the future is as of yet unknown .
My husband is three and a half years post chemo /surgery for OC .The treatment has certainly been life changing for him but he now has a quality of life he wouldn’t have had without it .
He endured a five month diagnostic process prior to me having him transferred to another hospital where within 24 hours he received his definitive diagnosis. He was told by his surgeon that he was in a pretty poor state when he arrived at the second hospital and it was only because he was a fit and agile man prior to his illness that he actually came through it all .
I totally understand your lack of faith in the medical world as the whole ordeal at the first hospital has left me with my faith tested to the limit too .I had a meeting with the heads of departments and the ward manager who we’d dealt with at the first hospital .I had an extensive list of What Ifs and Whys. I have yet to receive any logical answers only ‘Lessons have been learned ‘ and ‘We could’ve done better ‘ !
There are no words that can take away your pain and what ifs . but given time you will understand that you did what you thought was for the best , at that time .
Sending hugs to you at this difficult time
J x
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