Sleeping post oesophagectomy

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Hello

My mother is 7 weeks post her esophagectomy surgery. She is sleeping sitting up as even turning on her side slightly immediately causes bad reflux. Because of this she is having a lot of pain in her coccyx bone. She has a special cushion she uses to sitting  during the day however it is not comfortable for sleeping at night. Does anyone have any tips or advice that could help with this?  

  • Hi. A good quality memory foam topper on the bed should help. For propping up use medical wedges under the pillows. I have two joined together with velcro. Maybe she is propped up at too high an angle. The reflux problem seems excessive so see what help the hospital can give with this. Hope things improve. 

  • Thank you very much for your reply. She actually has a good mattress at the moment but we will look into getting a topper. She had a bad night of reflux again last night as she attempted lying on her side due to the pain in the coccyx but again it resulted with reflux. She is due in for another endoscopy beginning of May to see if she needs another stretch done so we will Mention all of this then,

    thanks again and hope you are keeping well 

  • I had the same problem after losing a lot of weight after oesophagectomy, my coccyx was very sore. I bought a small sheepskin to put on top of the sheet under my bum and I did find that helped.

  • Good idea we will try this also, the weight loss definitely doesn’t help thank you for the reply 

  • I just noticed you had the squamous type cancer this is the same as my mams. Can I ask if any of your lymph nodes were affected? Hers looked clear in all scans but they found cancer in 2 of 48 they removed during surgery. However there was no cancer remaining in the oesophagus removed.

  • My pathology results showed that I didn't have any cancer left in the oesophagus  and all the lymph nodes they took were clear too. 

    I get reflux very occasionally if I turn onto my left side, the right is no problem. I sleep on my back, with my head and shoulders propped up. I don't take any PPIs for reflux, my surgeon said he thought I would be unlikely to need them long term as my anastomosis is right at the bottom of my neck so there is very little oesophagus remaining. Does your mother take a PPI? They should help.

    I hope your mother's coccyx improves soon, mine took a few months to get better helped by managing to put on a little bit of weight. I still avoid hard chairs though!

  • That’s great to hear your pathology report was so positive. 
    She is currently taking some anti reflux meds will Check if she has the ones you have mentioned.

    Thank you again for the response all of the tips are so helpful.