Telling your loved ones “its back”

Hi Jennie,

So sorry to hear that your battle continues. I’m sure you’re not looking forward to the dreaded PICC line and more chemo. Telling family is tough. I remember having to do that 2 years ago. That’s how my wife and I spent our wedding anniversary in 2023. Thinking of you. CB

Hello CB

Good to hear from you how are you, CT ok? We have come a long way since 2023, lost some beautiful people and some of us find ourselves here still fighting.

I know it is no-one’s fault but seeing that hurt on their faces, dam….. they give me strength and with my own, I’m Wonder Woman, just older haha.

Spoke with my sister yesterday and today I will start letting my work colleagues know, I am hesitant with some as I get that negative feeling/comment. I work 3 days a week, love my job so it is important and good for my mental health, I can work from home so that’s good. 

Anyway CB I am babbling on, let me know how you are doing, have you heard from Von.  Bet the beach walks have been rough this last week, do you still cycle ? 

Take care BW Jennie

HI Jennie

Sorry to hear your going through this again, I just came on looking some advice on how we know if a reoccurrence has happened? Are there signs we need to look out for or I suppose everyone's different.

It my partner that had it but he's always sick and getting worse and this is what im worried about. Suppose its just another long wait in the journey to figure it all out and not one right answer.

Wishing you all the best and hopefully you get your treatment sorted asap

Hello Samantha

I have no symptoms for this reoccurrence. I have always been told to report any new symptoms to the team. 

I did ask my consultant what symptoms would I look out for, he said loss of weight un-explained and because the active nodes are at the back near my kidneys, back ache in that area.

I do get pain in my right side, rib area, but I have always had that from the Op which was Feb 2024.  

I would seek support from the upper GI team.

Best wishes Jennie 

Hi Jennie,

Just had a phone call from oncologist. CT scan came back clear for cancer, thank God! Just a wee issue with small intestine creeping up into my chest so need a wee procedure to tighten up my diaphragm when I get home from holidays. Currently in Tenerife for the next 9 weeks enjoying getting away from the cold so glad I don’t have to head home early. Hard not to feel a bit of guilt for receiving good news when others are receiving the opposite. Just hope I’m not the only one though. Still regularly think about Dean. One year ago next month…

Thank you Jennie, I will chase this up.

My fella always gets pain right side aswell but has had this from the surgery, im going to give them al call today

Thanks so much

wicked news cool blue, know what you feel about feeling bad for worrying, just still being here to worry is something.  we have kinda taken a leaf out of your book, we didnt stop, take a breath, and a sunny break before the masectomy, so as long as we hold our s**t together here (currently working through how we are to each other) when we have the pet scan results, plan is to bugger off for some sun even if its only for 5 days, cant believe its been nearly a year since Dean, he got us all through so much, this bloody life is too short, enjoy that sun and some cocktails.

take care

god love you Jen, totally get the hot tub and swimming thing, with the feeding tube had so many different dressings to protect the feeding tube, missed the tub so much, just time to take a breath and switch off.  Main thing is you are on their radar, and back in the system, we didnt have family too let know, and some friends we did tell, well they dissapeared, as we all probably have found to some extent, but also met some amazing couples, people in same boat as us in the early sessions at the churchill, kindred spirits that got it totally, still see them now.  Just dont do too much, i overcompensated trying to be busy, bit my right on my ass.  thinking of you, and thank you for your kind words

Oh Jennie im so sorry to read this   such a cruel disease. I can't imagine how you tell your loved ones .

Andy has struggled on , still has problems after eating no matter when or what he has but I guess it's to be expected . 

Stay strong lovely lady .

Big hugs 

Vonn 

Xx

Hello Vonn

Good to hear from you and apart from the eating problem its good to read that Andy is doing well.

Cancer is cruel, we will have to be meaner

Best wishes Vonn 

Take Care Jennie xx