NED

That’s fantastic news tiff !! So pleased for you all, have a wonderful Christmas and a happy and healthy new year xxxx

Thanks you so so much 

How are you doing ? 
xx

Very well thank you ! Also looking forward to a better Christmas than last year xx

1. Which hospital did he have the radiotherapy?

Just want I wanted to hear. I hope your Christmas is truly wonderful xx

Hi Bob. 
He had the treatment through Genesis care in Oxford. 

That’s great news, have a wonderful Christmas x

Thankyou Erika and to you too xx

Just wanted to reach out and say it has really helped me to read your husband’s story, I read through some of your previous activity and believe my mum’s diagnosis is similar to your husband’s, although she is 56. She is T3N3M1, metastasis is bone. After one round of CAPOX, she has no pain at all, more energy than she’s had in a long time and can swallow and eat better than she has done for months, pretty much what someone would normally eat in a day. We hope that this is a sign the chemo is doing what it needs to. We are seeking second opinions from The Marsden once her TEMPUS blood and tissue test results come back. She is Her2 negative and PDL1 is 0 so we hope the testing identifies some other avenues for targeted therapy. I wondered if I could ask, did you seek private opinions for the Ivor Lewis surgery or was this NHS? Before the scan, were there early signs that made you think the treatment was working? Was radiotherapy ever used earlier on?
Truly hope you all have a lovely Christmas and thank you for sharing as this has really given me hope.

Hannah xx

Hi Blueberry,  

I'm sending lots of love and positive vibes to your mum and all your family .

I'm so happy my husband's journey has given you comfort. Something which I never would have imagined back in December 24.
So we do have private health insurance. We used the Marsden for a 2nd opinion. They wanted the keep him on the Capox and pembro for longer due to his positive response. Our local hospital is the Derby royal but he had his treatment through Nuffield health . His oncologist pushed alongside his surgeon at the MDT and it was agreed he would have surgery . Surgery was at the Royal Derby and luckily no complications during his stay . 

 Your mums response sounds  wet similar to my husband . It was like he came back from the dead days after his first session of chemo and pembro . He was eating and had more energy. Once I saw this I instantly felt better because I could tell It was working . 

Radiotherapy wasn't offered untill the reoccurrence. He had 5 session of MR Linac (also know as sabre) This is a mri led radiotherapy that moves in real time with the tumour. This, as far as I know is not currently available on the nhs. I don't think there are many machines in the uk.  It was described as surgery without the knives.

Honestly remain hopeful , if there is anything I can do to help or advise . Feel free to send me a PM and I'll send you my phone number 

Wishing you all the best 

Tiff xx