sorry to rant, cry, vent, especially at this time of the morning, so after my breast cancer oncologist dismissing my weight loss issues down to radiotherapy for my breast cancer, and it turned out to be oesophagus cancer, (cost me 4 months before a camera, thank god for my gp and the surgeon at another hospital who did the op) ive had some symptons, called my new upper gi nurses expressing some concerns, one of them being i was told by my previous oncologist, no longer at the hospital, that i would have 3 monthly scans, last one being july this year, hence being back under the original oncologist. within 24 hours i had 3 missed calls, which i stupidly missed being out buying some small presents that this time last year christmas was cancelled, asking me to call back urgently to make an appointment for a ct scan!!.
this was on the day that we actually went into a travel agent to discuss a big holiday, so now i have gone into panic mode, im angry at my husband for not questioning why i didnt have a scan in october, but again from previous posts, you will know that if i wasnt coping he couldnt. ive booked stuff for 2026, stuff that this time last year i was scared the house would be up for sale and we would go our seperate ways, i was being bottle fed, before the op in jan this year. spent xmas day on my knees upstairs crying while he was eating a xmas meal for one.
so i have gone straight back into that horrible dark hole, angry and upset at myself, husband, bucks oncologist's, all the what if's, why did i accept being looked after by this person that could have listened to my concerns back in march 2023. sorry to vent, i cant sleep, can hardly see from all the crying, husband has gone into flight mode, when all i wanted was a hug, feel stupid for making plans, xmas day, new years eve, even some camping july next year.
why did i put myself back under the same oncologist,why didnt i have more confidence to say no, what do i do now, its obvious that they know i should have had a scan in october, they take notes at every appointment, how do i get a copy of those notes which will cleary show from my original oncologist 3 monthly scans, which i did query as the reason for the big op was not too have the anxiety if declining surgery, being monitored 3 monthly. with scans.
sorry to reach out, i am so worried, i genuinely thought that it couldnt be worse than this time last year, seems i was wrong and i cant hold it together just now, if i play nice, i will get the support from my husband. if i struggle, its a different story, no kids, no family,
and i have now got to wait until monday to call them back, pretty sure i will be having a scan next week, is it because they have messed up or they think something is back, or both.
i just feel so stupid for not standing up for myself, but some days i just want the cancer button turned down. so kettle has just boiled, will make a cuppa and take a breath
thank you for reading, what crap timing, was i wrong to have called them, should i have left it to the new year, and then in my head the "early detection" sentence is playing
sorry jules x
Hi Jules sorry to hear your in a dark place again and at this time of year as well ! I know after your previous experience a reoccurrence is going to be the first thing you would think of but as you haven’t had the scan yet I don’t really think that’s why they would call you !
the only problem is leaving it so late you will be waiting for results over Christmas which is not ideal but please don’t let this news sabotage Christmas go ahead with your plans and try to make the best of it. In the middle of the night things always seem worse.
do you have the NHS app all my notes are on there from surgeons and oncologist’s keeping my GP up to date with any consultation’s and results so I can view them. I know it’s hard but try to stay positive if your feeling well in your self take that as a positive!!
take care Tricia
You rant as much as you like Jules …… no need to say sorry we are always listening. I’m so sorry you have to wait and worry again ….. it’s just horrible. Can you meet up with friends to try and distract you a bit? The worries always surface in the early hours and they just grow while your mind goes round in circles. It’s likely they’ve realised you should have been scanned and are trying to get it rushed through to catch up but no point in telling you not to worry because it’s a natural reaction. Can your GP offer any support for the anxiety? Wish I could be of more practical help but just know that we understand your feelings and are here for you whenever you need to offload.
Sending love.
Geraldine x
thank you both, i feel so selfish,and slightly ashamed for panicking and crying, just digging out those big girl pants, tricia will check my nhs app as well, going to do the decorations today and put the tree up, screw them, will call them on monday for the appointment and go from there. thank you ladies
xx
Don’t feel selfish or ashamed you have been through so much and it’s quite normal to have a melt down occasionally! We all have this little gremlin in the back of our minds that creeps to the front sometimes and we have to deal with him and put him back in his box and just get on with it as I know you will. Xxx
thank you all so called 8.30am, advised we need to scan you urgently, so we need you in tomorrow or christmas eve!. so 4pm tomorrow at wycombe where all the breast cancer started. so i am just clinging onto that this is because they know they have cocked up by missing the october scan, not some of the things i discussed with the stoke UGI nurse, but i will deal with this issue later. i know that if anything shows, surely nothing would move quick before christmas, it would be the good old pet scan, oncologist meeting, so unlike the masectomy, where we had no time to pause or reflect, or get away, it just got done in 12 days, this time i can still "enjoy xmas", only thing i am really worried about, is the groundhog day reaction from husband, after i made the call and was told i need to come in urgently, did have a little cry, which seeing me worried, scared and stressed, has just has the good old usual effect, silence, making it all about him, my fault i chased for a missed scan, etc etc, so i just hope they get the damned vein for the scan, then ill deal with the rest later. christ this lack of control, just when you think you have some back is bloody awful. all the emotions are back , anger being the bigger one, more at him for his reaction, and the timing, but i am not going to apologise for chasing a scan that should have happened october, there was a change in oncologist, first one didnt get his contract renewed, but he clearly said at the few appointments we had, you will have 3 monthly scans, the old breast oncologist, decided after 2 clears i didnt need further scans, thats in writing which led tme to realise scan 3 hadnt happened.
thinking of all you lovelies, at this time of the year, and beyond, what ever part of this goddamn journey you are on - physically and mentally.
we can only do our best with what we have. sending hugs xx
Hi Jules,
Sorry to hear that you are going through some tough times again, both in health and relationship. It is impossible to overemphasise the importance of having a good support team by your side as you navigate this difficult pathway. My wife was brilliant and I can’t imagine trying to get through it all without her. But you have already proved your mettle through your previous struggles and I’m sure that same determination and refusal to be beaten will get you through your current tribulations too. I wish you the best possible Christmas and a much happier 2026. CB
Cool Blue
Sending hugs Jules hope all goes well with the scan and they find a vein !!! And you don’t have to wait to long for results. Take care and try to have a good Christmas xxxx
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