Am I sleeping myself to health, or death? Should I listen when my body tells me it needs rest, or is it the cancer speaking, trying to save itself? Should I push myself and take up a personal trainer? I’d like to hear the opinions of the people here in this forum.
I was diagnosed with breast cancer aged 51 in 2020, during lockdown. Chemo, multiple surgeries, radio. Cancer free by 2022. March 2024 diagnosed with oesophageal cancer. All I had was a hoarse throat; lost my voice. Turned out it’s aggressive and has already thrown off metastatic cancer cells to my liver and bones, meaning it’s incurable. I’m undergoing chemo and immunotherapy, 8 x 3 week cycles till April 2025. Immunotherapy cannot cure it; it can, however, stop it from developing further: this has happened in many cases.
I came across Ruth Bader Ginsburg in my research and I find her story inspirational. Please read over the summary of Ruth’s cancer journey, gleaned from Wikipedia, and let me know your opinions: should I sleep or train?
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Ruth Bader Ginsburg (RBG)
Born Joan Ruth Bader, 15 March 1933-18 September 2020 (87)
RBG was associate justice of the Supreme Court of the United States from 1993 until her death in 2020.
She and Martin married in 1954. Their daughter Jane was born in 1955 and shortly after, Martin was diagnosed with testicular cancer. He eventually died of complications from metastatic cancer a long time afterwards on 27 June 2010, four days after their 56th wedding anniversary.
Throughout Ruth’s high school years her mother, Celia, had struggled with cancer, passing away in unfortunate timing the day before Ruth’s high school graduation.
Ruth herself tackled five bouts of cancer in a period of 21 years: colon, pancreas, lung, pancreas, pancreas. During this time, she missed a few bare weeks of work, took up physical training with a U.S. Army Special Forces trainer when she was 66 and could still do 20 press-ups by the age of 80.
1999 colon cancer – surgery, chemo, radio – didn’t miss a single day of work. Physically weakened, began personal training with the Special Forces agent – remember, she’s 66 years old – and found her physical fitness improved.
2009 pancreatic cancer, early stage, surgery on 5 Feb, released 13 Feb, back to work 23 Feb.
Nov 2014, had stent fitted after discomfort during exercise.
8 Nov 2018 she had a fall, broke some ribs and a CT scan showed cancerous nodules in her lungs. Dec 21 had a left-lung lobectomy. For the first time in over 25 years, she missed an oral argument on 7 Jan 2019. She returned to the Supreme Court on 15 February 2019.
August 2019, Supreme Court announced Ginsburg had completed three weeks of focused radiation treatment to ablate a pancreatic tumour.
January 2020, cancer-free.
February 2020, cancer had returned.
May 2020, Ginsburg was once again receiving treatment for a recurrence of cancer. She said she “would remain a member of the Court as long as I can do the job full steam”.
Ruth died on 18 September 2020, aged 87 from complications of pancreatic cancer.
Hi want2eat and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I don't have the same type of cancer as you, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies you might find this information from Macmillan on tiredness and cancer helpful.When you have a minute, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Thanks for the bump! Think my post is too wordy, or existential for the forums. Feel like I’m really on my own in this life
I do not fully understand what it is you are hoping to hear from members of this forum. Nobody is in a position to comment whether or not their sleeping or exercise habits have significantly prolonged or shortened their lives or the lives of their loved ones. The general advice from qualified medics is that the fitter one is the more able one is to tolerate treatment and for that treatment to be more effective. Being as fit as one can be is also of benefit to our mental health. Quality of life is of importance too.
I think the advice from anyone on here would be to listen to your own body and do whatever it tells you to do, be that sleep or activity! Please remember that when we are sleeping this is the time when the body is repairing itself
Hello,
I don’t think your post is too wordy but sometimes it might be hard for people using the OC forum to know what to say in response. Many people come here with their own questions and concerns and, rather than answering specific posts, they gravitate towards something they can relate to more.
My husband had OC and I have never known anyone to be so aware of their own body and its needs. I feel he found a balance that worked well for him: plenty of exercise (mostly walking) and rest as he felt it necessary. This obviously wouldn’t be possible for everyone because many people are too unwell.
You say you are on your own, do you have any family support? Talking isn’t every person’s cup of tea but it can be helpful especially when there are decisions to be made.
Very best wishes x
My husband would love to exercise more but at the moment he has side effects from treatment, including fatigue, a cold and hurt his back last week. He can barely walk for now. Everyone is different and, as others say, it's good to 'listen to your body.' I know that when I'm ill I prefer to sleep myself better, although I am very active and love my exercise. It's very different when the person undergoing treatment for is at the mercy of the side effects as well as the impact of the cancer itself. With OC, I guess depleted nutrition and weight loss would also impair the ability to exercise.
I didn’t ask if anything prolongs life. I wanted thoughtful opinions from other cancer patients, like I said, therefore everyone here is in a position to comment. I’m not interested in medical opinion. Unless they’ve been through it, their chat is all book-learning and statistics; they’re limited.
Thanks, Bob. Just wonder if the sneaky cancer is also trying to repair itself from the chemo and immunotherapy. I know we’ll never know. I just like to ponder while I’m still alive and kicking.
Thank you.
I will try exercising as well as resting. I still have plenty of vitality and yet feel medical professionals expect me to pop off any minute! Rest, sleep, take it easy - to me, that all sounds like lie down and give in. The disease is incurable but no more than that and I’m a relatively healthy 40 something.
I meant I feel alone as in, no one seems to understand my messages, as if I’m speaking another language. Thanks for your reply.
Thank you for your reply. I’m sorry your husband feels so poorly. I hope he gets relief. Side effects are awful, without extra ailments.
I’m trying light exercise in bed, dance moves, but sitting instead of standing. Using arms, upper body and modified leg movements. This is my third day exercising and it’s the first week of a chemo cycle - so my worst week. So far I’ve found this little bit of exercise has increased my appetite, a good thing!
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