Hi all, firstly I hope everyone is doing as well as can possibly be, I think about you all daily. I posted some weeks back in sheer panic that my partner was found incidentally to have a tumour in his oesophagus upper GI on a general health check lung CT. He was referred for endoscopy mid Oct, endoscopist said he thought it was a fatty lump during procedure and got another consultant to look down the scope and they stated they were 99percent sure it was a fatty lump but no biopsy was taken. The following week a consultant called and said that following MDT, specialists had agreed it looked like a benign lipoma but due to it’s 10cm size and mixed appearance they wanted a full body CT and a referall to another hospital for ultrasound endoscopy for biopsy. He had the full body CT 3 weeks ago and last week got a letter to go for MRI. Every piece of mail panics me so much and no one has been in touch to say MRI would be needed. My mind was racing thinking they have found something else on full body CT and are using MRI for staging. However we asked the radiologist why it was requested and she said the other hospital that had been referred for US endoscopy had requested it before the endoscopy. The time line is as follows
1. Lung CT and found the tumour Oct 7th
2. Endoscopy Oct 15th
3. consultant contacted on 23rd Oct to say he would go for full body CT and US endoscopy
4. Full body CT 14th nov
5. MRI 29th nov
As you all know the wait is just horrendous and everyday is just full of fear and passing the time of day until the mail comes or a call to go in is made. He went for a endoscopy 18mths ago due to heartburn and apparently the tumour was there and 7cm then but at the time they told us it was fine, it’s only came to light now it was there the whole time. What I’m wondering is, is it normal to wait this long for any contact or any results? And do you think there is any hope at all for him?? I’m so conscious of the time passing and he doesn’t really have any symptoms expect occasional night sweats and the odd hiccup. He is eating fine, no weight loss as far as I can say although daily I study him for symptoms and think I see them all in him I feel like I’m losing my mind. Such a horrendous journey to be on. Thank you kindly for listening to me again.
claire x
