Hello, I was wondering if anyone had any experience of an oesophagostomy that they could share with me please - also sometimes known as a 'spit fistula' I think. My Dad had a laparoscopic Ivor Lewis at the end of March for stage 1b OC and unfortunately has had very major and serious complications including an anastomotic leak and an aortal rupture - and is now potentially looking at an oesophagostomy as the only option left. However there seems to be almost nothing about it online apart from a handful of very complex medical reports, when I'm interested in more personal and practical experiences like quality of life and what you can and can't do with one. Thank you in advance, best wishes to all fighting this cruel and horrible condition xx
Welcome, I haven't heard either of this particular condition I am just over treatment stage, have you tried the Cancer Research Website/discussion pages.
You should also ask the Medical Nurses who would have been assigned to your Father's treatment and there will be MacMillan Support within the hospital he attends.
I have replied to keep your request/contact to the top and someone who knows will come along
Take care - DON'T use Dr Google !
Tony
We will move mountains to help people with cancer live life as fully as they can.
We'll do whatever it takes. For information, support or just someone to talk to,
call 0808 808 00 00 or visit www.macmillan.org.uk
Onwards and Upwards
Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022
Adminitrative Assistant at Frimley Park Hospital, Cancer Support Hub
