Oesophagostomy - has anyone got any experience of this?

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Hello, I was wondering if anyone had any experience of an oesophagostomy that they could share with me please - also sometimes known as a 'spit fistula' I think. My Dad had a laparoscopic Ivor Lewis at the end of March for stage 1b OC and unfortunately has had very major and serious complications including an anastomotic leak and an aortal rupture - and is now potentially looking at an oesophagostomy as the only option left. However there seems to be almost nothing about it online apart from a handful of very complex medical reports, when I'm interested in more personal and practical experiences like quality of life and what you can and can't do with one. Thank you in advance, best wishes to all fighting this cruel and horrible condition xx

  • Welcome, I haven't heard either of this particular condition I am just over treatment stage, have you tried the Cancer Research Website/discussion pages.

    You should also ask the Medical Nurses who would have been assigned to your Father's treatment and there will be MacMillan Support within the hospital he attends.

    I have replied to keep your request/contact to the top and someone who knows will come along

    Take care - DON'T use Dr Google !

    Tony

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