Hi all,
I had wondered about posting this but I know 5 years ago I trawled this site for positive stories. In 2016 my dad was diagnosed with Adenocarcinoma T2 with no lymph node involvement. He underwent chemotherapy, radiotherapy and the Ivor Lewis. Last week he got the good news that his latest scan was clear which was 5 years since diagnosis. He has adapted very well to eating frequently and often. There were times post surgery that I couldn’t imagine how he’d recover as walking to the bathroom was a big deal and he couldn’t stand the smell of food. But, he’s adapted so well that I don’t even think about that time any more. Tbh I hear more about his shoulder that he dislocated last year!
Wishing you all all the best on this difficult journey, and just wanted to highlight there is definitely hope and there are definitely people that come through the other side and lead normal lives.
xxxx
Congratulations to your dad for regaining a normal life.
Just like you, two years ago I wondered about posting that I had passed the 5 year milestone. It’s a kind of survivor’s guilt, gloating and crowing, while others are struggling and some succumbing to this horrible disease. But I thing, and hope, that it does provide some comfort to those patients and their loved ones that it is possible to recover and lead a fairly normal life after oesophageal cancer.
Just like your dad I have other health issues that come with old age that concern me more on a day to day basis than my cancer history.
Visiting some friends yesterday, friends that I hadn’t seen since before the first lock down, our discussion inevitably turned to our declining health. My concerns now are my deafness and rheumatism, not the small effect my cancer history has on my eating habits!
So I hope that your father’s shoulder soon heals and he continues to lead a healthy and fruitful long life.
I hope that stories such as ours continue to be posted and give comfort and hope to others.
Counting the days, making every day count.
Brent
Thank you so much for posting this positive news, so pleased for your Dad to have received great results
Those that are considering whether surgery is the right path for them, may take some comfort in the posts above, and that can only be a good thing.
Wishing Dad continued success going forwards
Lowe'
Hi there, just wanted to share my own positive news in that earlier today I had my 5 year "all-clear" and have now been formally discharged from the care of the UGI cancer team at Wirral NHS Trust.
Diagnosed in January 2016 with stage 2 OC aged 49; an 8cm tumour had wrapped itself around the base of my oesophagus where it meets the stomach; fortunate enough to be offered CEX chemo-surgery-chemo treatment which evidently has been successful. Had third endoscopy two weeks ago along with full blood tests, all have come back clear so am thrilled, as are my wife and three children, as you can imagine.
Hopefully this post does offer some comfort and hope to those who are in a similar position to what I was in five years ago; I'm conscious at the same time that not everybody is as lucky as I have been; I wish you all well
Kev.
Congratulations Kev,
Brilliant news for you and your family.
Thank you so much for sharing, as you say some are not as lucky, but to have a clear picture within this forum of treatments and outcomes is exactly what we need here, (in my opinion)
Long may you continue with such positive results
Lowe'
Thanks Lowe.
I'll continue to pop on here from time to time; the site was a source of optimism to me during some darker moments, so perhaps I'll be able to offer practical advice based on experience to others going through the same situation.
Cheers
Kev
Bravo !! and Brilliant news \
Well done to Kev and Brent too !!
I just go my 4 years all clear (so catching you up) having been diagnosed at T3N2M0 pre Chemo and T2N1M0 post Chemo but pre Ivor Lewis .
All the best and best of luck to all others on their journey too
Pete
Hi Kev
Great to hear you have the all clear. Your post is really helpful as my husband is about to start the same treatment as you had, the chemo-surgery-chemo. His tumour sounds like it’s in the same place too. Scary news to absorb and you hear such awful things about chemotherapy but we’re going to take this one day at a time xx thank you for sharing your story xxx
Hi Tishy
sorry to read about your husband but it is a real positive that he has been offered surgery, meaning a curative path !
Hope he copes well with the chemo; for me the pre-op chemo was actually very bearable , loss of hair of course and occasional nausea but overall not too bad.
my post-op chemo experience was quite different however and I had to call it short not long after commencing the second cycle of the three scheduled ; by that time though it had done it’s job according to the oncologist !
hopefully your husband will cope well , as you say , one day at a time is the best strategy .
best of luck! Lots of good folk on here who will be able to help and advise on the way
cheers
Kev
Thanks Kev so glad I signed up for this support network. Already feeling more positive xxx
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