Hello
I’m new to this. I was recommended to join this group as my world has been turned upside down. Back in July my husband was diagnosed with stage 4 cancer of the oesophagus. He has just finished his chemo. Told he will have a scan and 3 mth break then another scan to see if he could have more chemo.
The issues I have are my young children 7 and 4 know Daddy is poorly. We haven’t used the word cancer yet I thought they were too young to hear that. Our eldest 21 has taken it badly.
Also I feel like I’m going mad because I’m over thinking everything and the what if scenarios are making me so so tired. I know you can’t do what ifs but I can’t help it. What is he can’t have more chemo? What if he gets worse over 3 mth break? What if he’s not here to see our littlest one start school, how will the kids cope? And they just a snippet.
I’ve changed my hours at work so I can drop and pick up children. He used to be able to do mornings but can’t manage sorting both of them. I put a smile on for everyone, at work I’m still making people laugh and working hard. I don’t want people to worry about me. I’m sorry if this is too long or wrong place to write this, please delete if necessary
Thank you
Hi, first of all please don’t be sorry for your post as this is what this site is for, we can all share our highs and lows together and support each other on our journeys, really sorry to hear about your husband and your worries, I myself have stage four oesophagus cancer and have five children of various ages, but not as young as your two guys. And yes it’s hard being positive all the time, but there’s nothing wrong with having our off days and tears, I don’t know about your husband but I seem to be the at times telling my family and friends that am fine and looking forward and being positive! But if am being honest with you and myself it’s getting harder the longer this goes on, but for the sake of my wife and kids I try to stay positive most of the time, I myself have my latest scan on Monday and again worrying already. On our children (forgot to say we have 7 between us) we decided to be as honest as we can with them and for us it feels right, I don’t know where you start with two as young as yours? Please come back for any thoughts you would like to share, and remember we are all here for you and your family on this difficult journey.
take it easy, x
Hi Las1
Thank you for sharing some of your story with us, you are very welcome here and I hope that you will feel able to continue sharing whenever you like.
My husband was diagnosed in May, stage 4, but continues on chemo, and although he had a two week break, over Xmas, he has chemo (maintenance) every two weeks...
What I need you to remember is, you are entitled to every single one of those thoughts, but you must also know, that you and the kids will cope. As you ask the questions, as you think of what your future may look like, please always end with, We will cope....
I spend many days scared, many nights thinking, being kept awake by thoughts that I feel are outside of my control, I know it is not possible for everyone to switch of thoughts, but it is possible to remind yourself how strong you are, how strong you may have to be.
That said... some of the stories on this condition are truly uplifting, there is hope, hang on to every last shred of that. If you need to chat, please feel free to message me, I know how frightening this is... I am here.
Take care of all of you, but give You some time too.
Lowe'
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