Told today 12 months if my body can take chemo

FormerMember
FormerMember
  • 18 replies
  • 49 subscribers
  • 13626 views

My cancer team met today and I was phoned about 5pm, 30th December 2019. I was told no matter what an operation would never be an option, the lymph nodes are very large surrounding a large tumor in my gullet with liver cancer as a secondary.

I asked how long they think I have and it was explained to me even if my body can take chemo, and it was pointed out my blood results are not good, an operation is not possible and at best if the chemo manages to slow down the spread I could expect 12 months at best, I am completely devastated sat here alone trying to understand what the hell has happened.

I will see a oncologist in the next 2 weeks to discuss what I feel is best for me - what the hell do I do.

  • FormerMember
    FormerMember

    Hi so sorry .

    We are in a similar situation my husband and I went on the 18th December to discover he has thyroid cancer and gullet cancer it's in lymph nodes too.

    They had MDT meeting today but not had a call yet .

    Our children birthdays are in January and February they will be 15 and 16 years old .

    Life can be so cruel but like my husband said and least he can plan what he wants x

    I wish you my thoughts and hugs 

    Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you mybear, until my phone call at 5pm today I thought the same as your husband, because before that call I had hope and I had nothing but positive thoughts.

    My funeral is sorted so I have nothing to plan the will everything is done before this evil cancer my attitude was I have no fear of death, but sat here alone in a newish town with no friends or family I am scared, I am scared of the way I am going to die.

    I have some big decisions to make do I spoil what life I have left with chemo or do I move into the hospice and take it has it comes giving up my dogs and home ? The chemo is not forced to work in giving me 12 months, I felt they was trying to put me off having it saying you are now on palative care and the hospice Will be in touch.

    No, when you are told that an operation will never be an option and you only have a chance at 12 months of life if my body can take chemo and the chemo may make matters worse your outlook changes.

    I am sorry to hear about your husband, all we can try to do is stay strong.

    Alan

  • FormerMember
    FormerMember in reply to FormerMember

    Hi 

    Can you move back near family and friends?

    We are not sure of my husband outcome but we do know it's in his lymph nodes. 

    Big hugs and stay strong.

    Our German shepherd Max is great for cuddles and talking to x

  • FormerMember
    FormerMember in reply to FormerMember

    I am considering moving near friends but not sure that is the best thing to do by the time this home on the market and seeking another for me and my two dogs it may be a wast of precious time, I am feeling getting involved with the hospice, and I have learnt of other cancers groups within 20 miles from me may be more supportive rather moving a 100 miles away having to get new care team, consultant hospital, I will fight this cancer from here - doing the above will bring friends and get me involved with people who understand.

    The hospice Will build support around me now I am in palative care, they will support me in my home with my much loved dog's by my side until the time comes I can no longer cope.

    The RSPCA have offered to collect and ensure my dogs will be rehomed to suitable people who will love and care for them.

    I am not going to give in to this evil cancer I will build my support.

    Regards

    Alan

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Alan

    I wish you luck and support .

    Glad you have your fur babies xx

  • You are not alone tonight there are people reading these post and weeping for you. But they have no words. There are no words.

    Counting the days, making every day count.

    Brent

  • FormerMember
    FormerMember in reply to BrentS

    I am lost for words and confused how my life has been torn apart since 5th December, what the hell has happened I was so happy starting a new life, I have just purchased a touring caravan so me and dogs can enjoy trips together, I have made bookings with the caravan club for all next year, we was going to have the time of our lives - freedom.

    That phone call has torn me apart I am laid here with tears running down my face  unable to lay flat in bed because of blood and reflux coming into my mouth.

    I have been given no medication to help me, with luck now I am palitive care and the hospice is involved I may get something to relieve the symptoms.

    My poor gorgeous dogs they are my world the time is coming for us to lose each other one I have had for over 10 years, who will want him at  his age.

    Thank you for your kind words, so pleased I found you people that care.

    Alan

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Alan,

    I am so sorry you are having to go through this, I wish I could offer you more than words, sending love XX

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you knowing I am not alone is a comfort having you all hear wishing me well is making me stronger,it's just a shame that love and a strong will to live is not enough.

    I hope I have the strength mentally and physically to cope with chemo and just maybe the dogs and me will find some freedom in my caravan tourer and enjoy a couple of trips together or do we skip the chemo and go now whilst I am capable for a couple of weeks, wish it was summer I think I would just go.

    Sorry if I am talking nonsense just a little confused and upset.

    Thanks for being there

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Alan,

    Yes, if only love and a strong will to live were enough to get us through, but I promise that they will definitely help you. Of course it is difficult to make decisions at the moment, but once you have a plan in place it will become clearer. I assume you are in contact with a CNS as part of the hospital team treating you, they are always our first port of call, you must have so many questions, so if you haven't already done so I would suggest you speak to them. Get a plan in place, maybe once you know what sort of chemo they are offering it will help with your decision. not everyone suffers the side effects, quite often it helps by shrinking the tumour allowing ease of swallowing.

    Don't ever apologise for "talking nonsense", no one here will ever accuse you of that, say whatever you want, whenever you want, always someone here to listen.

    Sending love XX