Hi I'm new to this group but feel maybe I can join in about my resent diagnosis I was told 23rd Oct I had oesophagus cancer and so much is going on it seems like I'm not in control. Is this how other people feel . I am to start my radiotherapy and chemotherapy in just over a week and am really scared but know I have to have this, I've had a feed tube put in as I haven't eaten for 7 weeks and have lost so much weight . I was with wondering does everyone feel like this?
Hi
It is such a scary time for us . But ..the staff who will look after you will guide you through the process. Get a notebook and always write down any questions or concerns ( no question is a daft question) and dont forget to ask the questions!
The next few months will be full of ups and downs ....tests procedures and treatment. Then review of the same . Everyone is different as to how they respond to their treatment be it side effects ....how quickly or slowly they happen or not.
Just take one day at a time . Try to look for a positive every day to keep your chin up.
Talk to your family and friends and let them know how you feel. Let them help you if you need help or let them know if you are fine some days and feel like being independent.
The feeding tube will help you get the nutrition you need and in turn it will give you the physical strength to deal with the enormity of the situation.
Keep your chin up. We are all here sharing your journey.
Frances x
Well I don’t know what happened to my post from last night but it didn’t get there.
so anyway...
I was diagnosed with oesophageal cancer six years ago on 23rd October 2013! So we have a connection. I’m not sure what else our journeys will have in common but I’m happy to share some of my experiences.
The build up to starting treatment is scary. Things drag, then things move too fast, so it’s not surprising you don’t feel in control. If things aren’t happening as you expected you can contact your specialist nurse and find out why. They will become your new best friend!
It helps enormously to have both a positive attitude and to have faith in your medical team. It’s thankfully all new to you but regrettably all too routine for them.
In spite of believing in my medical team and having a positive I was none the less scared. But I think these things improved my response and recovery.
I hope you find things easier than you feared. Post again and tell us how things are going.
Counting the days, making every day count.
Brent
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