Its less than a month since my husbands diagnosis, and it feels like months ago, so much has happened.
He has an esophageal adenocarcinoma at the goj about 4 cm, we have been told today that although this is T3 there are no Mets, so are very thankful for that.
To be honest still in shock, also found out that his endoscopy in Feb 2018 showed signs of Barrett's Oesophagus and it wasn't investigated or followed up, so now 14 A & E trips and 23 Gp Appointments, a week long wait for GP to contact Advice and Guidance this is where we are. I think i am still in the anger phase, and my husband is bereft, that he wasn't helped more.
I know i need to get over this to be as supportive as i can, but he has been so ill for so long
I can fully understand your anger as maybe this could have been prevented but maybe you will never know , save your energy but the road ahead , your husbands tumour sounds similar to mine and I am a year post op , you can help him get through this and stand up to cancer x
I am 11 months since my treatment finished and in remission.
I understand your anger but your husband has a tough journey ahead and will need your support.
From what you say he will be offered a curative treatment which is usually chemo --> surgery --> chemo. The modern chemo is FLOT which is statistically more successful than the ECX chemo.
Once I was diagnosed I had little contact with my GP, but my experience with my GP was very positive, and i'm sorry yours has not been. My GP practice offers an online booking system, telephone consultations, online repeat prescription system, all of which I used during treatment. If you have a computer or a smart phone it may be worth checking if your GP practice offers these services?
You also need to be strong as this journey is going to be tough for you too.
Maybe try and focus your anger on getting through the treatment and beating the cancer?
