FLOT chemo

Hi cumbrialad, 

I finished my treatment 11 months ago and am in remission. I had 4 x FLOT --> Surgery --> 4 x FLOT.

I found the post operative cycle of FLOT harder than the surgery. My oncologist told me that the effects of FLOT are cumulative. I had pins and needles in my hands and feet (chemotherapy-induced peripheral neuropathy (CIPN)). The good news this has all gone with me. But I am more sensitive to the cold and this can cause my hands and feet to sting. I still suffer from tiredness (fatigue), but again much less than when I had just finished treatment. I lost my sense of smell and taste, but again these have come back albeit I do like and dislike different foods now. My brain is a lot less foggy, and I can concentrate better now. 

Basically things to get better! Just hang in there and be positive. 

Are they going to give you a post operative chemo cycle of 4 x FLOT?

Wishing you all the best on your journey. There are lots of us who have had the treatment and although all our journeys are unique, they are similar and I'm happy to share mine. 

Can we have a chat on the phone  ? I can call you . Regards chris

Hi Chris 

As posts can be read by people not logged in to the online community you shouldn't post, or ask other people to post, personal information such as phone numbers. 

I hope you continue to chat through the community and benefit from each other's experiences. 

x

Thanks for comments. Just found your musings on site. Yes I'm doing same as you. 4 Flot. Op. And 4 Flot or that's the plan at present. I'm same as you. Horrible taste. Pins and needles. Tired. Constipation but they gave me sodium docasphate to take and I've found if I just take them during 14 day cycle things move !!!  Rather have this than constipation. I've got CT scan in 2wks then 6/8 wks op in RVI Newcastle. Looking forward to a bit of normality in next few weeks. You're right side effects do get progressively worse as treatment goes on. I'm having filgrastim injections which finish on15/11. They've certainly kept blood in order. Oh also had a few ulcers in mouth but they're only temporary. Should be out for a few beers at w/end all being well. A lot of niggly side effects I put down to normal wear and tear in lifestyle!!! Though they defo will be cranked up by chemo. I'm 68 in Jan so you get a few niggles. 

hi. starting chemo week after next . FLOT. 8 weeks. 4 sessions. then a 4 week lay off before surgery feb. struggling a bit this morning to be honest. off to gym with pal. I know I will make it trhough this but its hard mate