I am trying to understand and help my husband who is 6 weeks out of his surgery so that he could go through this ordeal as smoothly as possible.
One of the issues he complains about that he cannot sleep well at night. He tosses and turns, perhaps wakes up to go to the toilet may be 2 times to take a leak, and then comes sun he says that he could not sleep at all.
I don't know how to help him about this. He is not complaining about reflux or anything but that he cannot get a straigt deep sleep as he used to. Then he says that his mind his blurry and weak during the day as a result of this...and obviously he is fussy during the next day.
He had total gastrectomy and half of esophagus removed where they cut open from lateral thorax area..
Any advice would be much appreciated.
Hi. I haven’t gone through the op yet. It is planned for January. I also have difficulty sleeping but personally its been like it is for so long I’m used to it. The most obvious thing to do for yourself is see a GP and try and get some sleeping tablets. If these work then your husbands body clock might get into a better sync. Best of luck
Hi
I think problems sleeping is a common problem for lots of different reasons. If it’s a physical cause due to reflux or pain then there’s some medication to help. I found sleeping much more of an issue after diagnosis and during treatment. I discovered the App Headspace and paid the £10 a month subscription. It has a whole section on sleep. It’s based on a mindfulness approach but it also teaches you strategies if you do wake up during the night. It has lots of things to help you fall asleep and I often use this even now after my treatment has finished. Often I fall asleep listening to it!
It might be worth a try!
Jac
Hi Oyita
I have had 2 lots of surgeries and both times it was about 4 months before I got anymore then 30mins sleep at one time through the night. Even now the most I get is about 2hrs at once but it is getting easier to go back to sleep after waking. I also find the more sleep I get without getting up the more uncomfortable I am on waking as I think everything seizes up when not getting up or moving regularly.
I noticed your post about the concern over your husbands weight loss. I lost 2 stone after my stomach was removed and even though I ate little and often it went straight through me for months. I was overweight prior to stomach removal so the weight loss was manageable. So what your husband is experiencing is quite normal although I can understand your concern.
I was assigned a dietician and specialist nurse who I could call any time to discuss concerns and ask for advice. My surgeon and oncologist are also fantastic. I hope that your husbands medical team are just as supportive and I would suggest contacting them about any concerns especially regarding medication.
Hope this helps and your husband is continuing to recover. It can be a long slow process.
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